Annual SMA Research & Clinical Care Meeting

The Annual SMA Research & Clinical Care Meeting is the largest meeting of its kind in the world focused on spinal muscular atrophy (SMA) and offering insightful discussion around new research and clinical care practices.

The Annual International SMA Research & Clinical Care Meeting brings together researchers from academia, government, and biotech/pharmaceutical companies with multi-disciplinary healthcare providers who are diagnosing and caring for people with SMA. The event is held in conjunction with Cure SMA’s Annual SMA Conference.

Man giving a speech at SMA research and clinical care conference.

Goals for SMA Research & Clinical Care Meeting

Create open communication of early, unpublished scientific data, accelerating the pace of research

Foster collaborations, including cross-disciplinary knowledge sharing, integration of researchers and drug companies, and dialogue among new and leading clinicians

Facilitate collaborative discussions between new and leading clinicians to achieve improved care for SMA

Promote conversations between the SMA community and clinicians, researchers, and industry partners

2026 Annual SMA Research & Clinical Care Meeting

The 2026 Annual SMA Research & Clinical Care Meeting will be held in Orlando, Florida from Wednesday, June 24 – Friday, June 26, 2026, at Disney's Boardwalk Inn. Bringing together researchers from academia, government, and biotech/pharmaceutical companies with multi-disciplinary healthcare providers who are diagnosing and caring for people with SMA, the Annual Research & Clinical Care Meeting is the largest meeting dedicated to SMA research and care. We look forward to reuniting the community at this 30th annual meeting to learn about the latest advances in research, treatments, and care.

As always, the Annual Research & Clinical Care Meeting and Annual SMA Conference run parallel with each other. Through these meetings, we bring together researchers, healthcare professionals, and families to network, learn, and collaborate. If you have any questions, please reach out to [email protected].

Click Here to Register

Photo from a Research and Clinical Care conference presentation.

Abstract Submission

Abstract submission for the 2026 Annual SMA Research & Clinical Care Meeting is now open. We ask that all abstract submissions for talks be on new and unpublished data. Talk selection will be based on the content of your abstract, so please give enough detail for your submission to be evaluated.

This year, we encourage abstracts that spotlight key topics, including:

Dual Treatment or Combination Therapy (biological evidence in support of/against to clinical observation/experience)
Scoliosis and Orthopedic Interventions
Neurocognition and brain structure/function
Rehabilitation Recommendations: (examples may include: bracing, novel equipment, and school accommodations)
Manifestations of disease

While the above are proposed topics of focus, we welcome abstract submissions on any topic related to SMA. Your contributions are vital to advancing our collective understanding and improving care outcomes for individuals with SMA.

Deadline to submit abstracts is Friday, March 6^th. Notification of acceptance will occur on or before April 3^rd.

Click Here To Submit An Abstract

The Clinical Care Session of the 2026 Annual Cure SMA Research and Clinical Care Meeting Accreditation

Information on CME coming in 2026.

Research & Clinical Care Meeting Agenda

Agenda will be available in 2026.

2026 Sponsors for Research Meeting

The research portion of the 2026 Annual SMA Research & Clinical Care Meeting is made possible by the generosity of our sponsors and supporters.

Presenting Sponsor

Title Sponsor

Expo Convention Contractors

Supporting Sponsors

The Dhont Family Foundation
The Jacob Isaac Rappoport Foundation
Luke 18:1

Gold Sponsor

Argenx

Gold Sponsor

NMD Pharma

Frequently Asked Questions

The following are some of the most frequently asked questions about the Annual SMA Research & Clinical Care Meeting. If you have additional questions, please email [email protected].

What is the cost of registration?

Early Registration

$1,150 for Industry
$550 for Physician/Researcher/Nonprofit/Academic
$350 Student/Fellow/Resident/Non-Physician HCP
$275 Community Conference Add-on

Standard Registration (effective May 8, 2026)

$1,650 for Industry
$600 for Physician/Researcher/Nonprofit/Academic
$400 Student/Fellow/Resident/Non-Physician HCP
$275 Community Conference Add-on

Late/Onsite Pricing (effective June 5th)

$2,500 for Industry
$750 for Physician/Researcher/Nonprofit/Academic
$425 Student/Fellow/Resident/Non-Physician HCP
$350 Community Conference Add-on

What is the community conference add-on?

Are refunds provided for registration if I cannot attend?

Since December 2024 per our updated refund policy, all attendees paying for registration are charged the processing fees related to the This applies to registration fees of all types. This fee is not refundable in any circumstances (including errors, refunds, discounts applied later, etc.).
The deadline for refund requests is May 1, 2026 (refunds will NOT include transaction fees).
Refund requests will not be considered after this date.
Any requests for transfers or swaps will not be honored.

Are attendees of the Research & Clinical Care Meeting able to utilize the children's program?

Please note, the Children’s Program offered for Community Conference Attendees is NOT available for Research or Clinical Care attendees and their families due to the large volume of community conference attendees.
Additional family members do need to be registered for the Community Conference to be able to attend any of the Community Conference events, such as the Meet & Greet, Family Friendly Poster Session, PJ Party and other special events! Please contact [email protected] for further information.

Will Cure SMA be offering CME/CE credit at the meeting?