SMA Clinical Trial Resources

Our tools are designed to empower you at every step of your decision-making process.

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Clinical Trial Resources

To explore all of Cure SMA’s new clinical trial tools, including Decoding Informed Consent, the Screening Visit Checklist, and the Travel Planners, please click on the titles below.

SMA Registry and Clinical Trial Finder

Decoding Informed Consent

Father laughing with his son in a motorized chair.

Travel Planners: Air and Ground

Manage your travel details with ease! Cure SMA’s travel planners will help you plan your trip to the clinical trial site. They are tailored to the unique needs of the SMA community. These planners provide helpful reminders and space to organize important travel details.

Travel Planner: Ground (English)

Travel Planner: Air (English)

Travel Planner: Ground (Spanish)

Travel Planner: Air (Spanish)

Travel Planner: Ground (French)

Travel Planner: Air (French)

Travel Planner: Ground (Chinese)

Travel Planner: Air (Chinese)

Care Series Booklet: Learning About Clinical Trials

Screening Visit Checklist

The screening visit checklist provides space for you to list all relevant information that you may be asked during your screening visit, such as age at diagnosis, SMN2 copy number, medical and surgery history, and more. The handout also includes space to list details about your specific screening visit, such as date, time, and contact information, and suggested questions to ask.

Screening Visit Checklist (English)

Screening Visit Checklist (Spanish)

Screening Visit Checklist (French)

Screening Visit Checklist (Chinese)