The Cure SMA Walk-n-Roll is a nationwide fundraising program that brings communities together to support Cure SMA’s funding of life-changing research, resources, and programming for those impacted by spinal muscular atrophy (SMA).
What is Walk-n-Roll?
Cure SMA's Walk-n-Roll program are nationwide community fundraising and awareness events. Think of this celebratory environment almost like a block party just for the SMA community. There are games and activities, music, light refreshments, and community celebration for fundraising efforts and the progress we have seen for the spinal muscular atrophy community as a result.
The actual Walk-n-Roll portion of our event is much more ceremonial than a typical 5k! The routes vary by location but are typically one mile, with opportunities to adapt or turn back as needed.
Registration for the event is free, fundraising is encouraged but not required and everyone is welcome!
An SMA Diagnosis Can Be Overwhelming ...
And that's okay! Our SMA community is ready to welcome you.
Cure SMA Walk-n-Roll gives you the opportunity to get connected with the SMA community and meet others who know exactly what it's like to deal with SMA. You will quickly realize you are not alone and that the SMA community and Cure SMA are here to help and support you.
What People are Saying About Cure SMA
“It means everything to us to have a family like the SMA community. Other families are always trying to extend their hand or give advice. It is an amazing thing. We love our SMA family.” - Steven Hoskin
“I have really enjoyed becoming part of the community, both from a social perspective in meeting people like me and from an educational perspective in learning how others manage with challenges in their care.” - Doug McCullough
“The generosity from Cure SMA was unbelievable. But more than that, the knowledge that we weren’t alone in this really kept us going in a very dark time.” – Paula Lavigne and Chris Arnold
“For us, being part of the community means we are not alone. SMA can be scary and may feel isolating. But knowing there are others out there like us—and drawing upon their support, knowledge, and experience—is truly life changing. I don’t like to think about what our lives would be like without Cure SMA.” - Nick Farrell
FAQ's about Walk-n-Roll
Is there a registration fee?
No, registration is free to attend a Walk-n-Roll event.
How long is the walk portion?
The Walk-n-Roll routes are typically one mile, with opportunities to adapt or turn back as needed.
What if there is no Walk-n-Roll near me?
If there is no Walk-n-Roll in your area, you can attend a virtual Walk-n-Roll called Walk-n-Roll USA.
Do you have to fundraise to attend?
Fundraising is encouraged but never required. If you choose to fundraise, you'll earn fun incentives like our Walk-n-Roll t-shirt and more.
How funds raised help the SMA community.
- The Cure SMA Care Center Network added ten new sites (29 total)
- Over 750+ SMA patients participate in the SMA Clinical Data Registry, including both children and adults with SMA
- Over 300 Adult & Pediatric SMA physicians, researchers, clinical staff, and neuromuscular program coordinators worked collaboratively to better understand and improve standards of care for patients with SMA
- Cure SMA solely supported the Pediatric Neuromuscular Clinical Research Network (PNCRN) of highly skilled clinical trial professionals
- Relaunched our basic research funding, now focused on developing additional treatments that will target different areas of the body to help bring back strength and function