The Cure SMA Care Center Network is the centerpiece of our efforts to address the changing landscape of spinal muscular atrophy (SMA). The goal of the Network is to develop an evidence-based standard of care that will improve the lives of all people with SMA.
Individuals with SMA have complex medical needs. This requires a team approach, with neurologists, pulmonologists, physical and occupational therapists, nutritionists, orthopedists, and others working together to treat the individual. Just as the clinical team takes a multi-faceted approach to treating the individual, with SMA Cure SMA takes a multi-faceted approach to improving care for all those with SMA.
With the advent of U.S. Food and Drug Administration (FDA) approved therapies for SMA, care is more important than ever before. As treatments extend lifespan, the number of individuals living with SMA will increase. This means we need more doctors and healthcare providers trained in SMA care, particularly for the teen and adult SMA communities. And with new treatments, the experience of SMA is rapidly shifting and healthcare providers need to adapt quickly to these changing needs.
The Cure SMA Care Center Network will also help expand access to approved SMA treatments, increase the number of sites for SMA clinical trials, and help accelerate and enhance insurance coverage and reimbursement. Check out our locator map to view all the Cure SMA Care Center Network sites noted below.