Annual SMA Conference
The Annual SMA Conference is an invaluable resource for the entire spinal muscular atrophy (SMA) community and is an opportunity to strengthen the connections among individuals with SMA, their families, and researchers and healthcare providers.
2025 Annual SMA Conference
We hope that you will join us at the 2025 Annual SMA Conference, which will take place from Thursday, June 26 through Sunday, June 29 at the Disneyland Hotel in Anaheim, California. Pre-registration is now closed. If you missed out on pre-registration, you will still be able to register on site.
If you plan on attending and registering onsite, please email [email protected] with the full name(s) and age(s) of the attendee(s) so we can be sure to accommodate you and set you up to register onsite.
We will also send you your link to book your discounted hotel room (based on availability).
Onsite registration will be open during the following hours at the Cure SMA Registration Desk, located in the Convention Center of the Disneyland Hotel’s Fantasy Tower:
- Wednesday, June 25 from 5:00pm – 7:30pm
- Thursday, June 26 from 9:00am – 6:00pm
- Friday, June 27 from 7:15am – 4:45pm
- Saturday, June 28 from 7:15am – 3:40pm
Name badges will be provided once you check in at the Cure SMA Registration Desk.
If you have any questions, please review our FAQ page or contact [email protected].
If you have any questions regarding the Annual SMA Research & Clinical Care Meeting which is held for SMA researchers and clinicians, please contact [email protected].
Our 2025 Sponsors
The Annual SMA Conference could not happen without our dedicated sponsors. Please contact [email protected] with questions and for more information on sponsorship opportunities.
Presenting Sponsor
Diamond Sponsor
Title Sponsor
Visionary Sponsor
Supporting Sponsors
- The Dhont Family Foundation
- The Jacob Isaac Rappoport Foundation
- Luke 18:1
Gold Sponsor
Cure SMA Offers Scholarships For Individuals and Families Who Wish to Attend the Annual SMA Conference.
The Adults with SMA Scholarship program offers a scholarship to every adult with SMA and their personal care assistant. The scholarship will cover registration fees, a travel stipend and one hotel room for three nights at the specified conference hotel.
The First Time Attendee Scholarship program is a scholarship that covers any individual with SMA who has never attended the Annual SMA Conference previously, and up to four immediate family members. The scholarship covers registration fees for those attendees, as well as one hotel for three nights at the specified conference hotel. Thank you to the support from the Luke 18:1 Foundation for sponsorship of this scholarship!
For families who are not newly diagnosed, we offer general, needs-based scholarships as well. Attendees can reach out to Cure SMA to receive information on any of these scholarship opportunities.
Questions about the Annual SMA Conference?
Email [email protected] or call (800) 886-1762.
Frequently Asked Questions
Cure SMA has released the booklet for the 2025 Annual SMA Conference! Click here to see all of the details. Please note that this schedule is subject to change, and you will always be able to see the most up-to-date schedule on your Annual SMA Conference mobile app – launching in June!
Visit our FAQ page to explore the most frequently asked questions about the Annual SMA Conference. If you have additional questions, please feel free to email [email protected].
Our 2025 Exhibitors
Please contact Jesse Aynes at [email protected] with questions and for more information on exhibitor opportunities.
Presenting Exhibitors
Diamond Exhibitor
Title Exhibitor
Purple Exhibitors
Orange Exhibitors
- Adaptive Switch Laboratories
- Argenx
- Hayek Medical
- Neotech
- Orsini Specialty Pharmacy
- Partners in Medicine
Visionary Exhibitor
Learn More About the Annual SMA Conference
Our Annual SMA Conference is the largest spinal muscular atrophy (SMA) conference in the world. Through the conference, we bring together researchers, healthcare professionals, individuals with SMA, and their families to network, learn, and collaborate. Cure SMA has been hosting the Annual SMA Conference since 1988, and it has become a weekend filled with a wide variety of activities, including:
- Educational workshops
- Keynote sessions with leading researchers and clinicians
- Family-friendly poster session
- Memorable children’s program
- Meet and greet with a family fun fest
- Teens and adults with SMA social activities
- PJ party and movie night
- Dance party
