A Lot Has Changed in Spinal Muscular Atrophy (SMA)
Today, there are four FDA-approved treatment options and more support for adults than ever before.
If you’ve been living with SMA, hearing about new treatment options may feel unexpected—but it’s worth exploring what these changes could mean for your life today.
Treatment Options Are Available Today
For adults living with SMA, these FDA-approved therapies were developed to address the underlying cause of SMA and are available for both children and adults.
Adults experience SMA differently, and treatment goals can vary. For some, treatment may focus on:
- Preserving strength and function
- Slowing disease progression
- Supporting independence and quality of life
Choosing a treatment is personal, and there’s no single right path. Things like access, insurance coverage, how a treatment is administered, and your lifestyle may all factor into what feels right for you.
For a more detailed overview of how treatments work, you can explore below.
We’re Here to Support You and Navigate What's New
In addition to treatment information, Cure SMA offers resources for adults at every stage.
We can help you:
- Access up-to-date information about SMA
- Connect with doctors and specialists
- Connect with the SMA community at in-person and virtual events
- Stay informed on research and development
Whether you’re exploring options or simply want to connect, support is available.
When You’re Ready to Connect
Fill out the form below to get personalized support from a Cure SMA specialist. You can:
- Learn more about how treatments work
- Prepare questions about treatment for a healthcare provider
- Connect with specialists or others in the adult SMA community
Cure SMA is here to help!
*Cure SMA does not provide medical advice or recommend specific treatments. We exist to share information, resources, and support so adults with SMA can make decisions that feel right for them.