Virtual SMA Webinars

Cure SMA is happy to continue offering educational and informational webinars that bring the SMA community together to learn, connect, and engage in a welcoming virtual setting.

Quick Links

Virtual Education Program

Going Away to College Panel Webinar

You can now view the recording of the Going Away to College Panel Webinar, where you will hear from a panel of young adults with SMA they share tips on campus life, accessibility, independence, and more.

Panelists included:

Bella Andrade
Madison Wolff
Andrew Cherico
Ryan Manriquez

Cure SMA would like to thank Scholar Rock for their generous sponsorship of the Virtual Education Program.

Virtual Adaptive Sports & Recreation Program

Adaptive Sports and Recreation Virtual Resource Fair

You can now view the recording of the Adaptive Sports & Recreation Virtual Resource Fair. This online resource fair provided an overview of national adaptive sports and recreation organizations, current Cure SMA resource guides, as well as information on how to start a new program in your area. It also featured an informative panel discussion. Panelists included:

• Josh Hewitt, North Carolina Power Soccer League

• Dr. Brittany Derecha, Ed.D., Move United

• Marley Robinson, Founder of Boston Whiplash, President of the United States Volt Hockey Association

• Dr. Melissa Mcintyre, DPT, University of Utah TRAILS Program

Adaptive Recreation Panel Webinar

You can now view the recording of the Adaptive Recreation Panel Webinar, where you’ll hear from adults with SMA, parents, and a topic expert who stay active through adaptive recreation like hunting, skiing, art, and gaming as they share their stories and advice for finding programs near you. Panelists included:

Doug McCullough, Water Skiing
Janelle Fiesta, Digital Art
Corey Ragan, Hunting
Ed Bronsdon, Snow Skiing & Cycling
Bronsdon, Snow Skiing & Cycling
Kristen Farrell, Snow Skiing
Steve Spohn, Gaming

Adaptive Sports Panel Webinar

Check out the recording for the Adaptive Sports Panel Webinar, where you can hear firsthand from individuals with SMA and other experts who actively participate in and/or lead adaptive sports programs. Panelists included:

Charlie Zerzan, Wheelchair Basketball Player
Marley Robinson, Volt Hockey Player
Alyssa Briglio, Power Soccer Player
Kurt Beach, Head Athletic Trainer for the Adaptive Sports Program, University of Michigan
Ed Bronsdon, former Executive Director of Outdoors for All Foundation

Thank you to Novartis for their generous sponsorship of the Virtual Adaptive Sports & Recreation Program.