Virtual SMA Webinars

Cure SMA is happy to continue offering educational and informational webinars that bring the SMA community together to learn, connect, and engage in a welcoming virtual setting.

Quick Links

Virtual Adaptive Sports & Recreation Program

Adaptive Sports and Recreation Virtual Resource Fair

Registration is open for the Adaptive Sports and Recreation Virtual Resource Fair, which will be taking place on Thursday, February 26 at 8:00pm ET / 7:00pm CT / 5:00pm PT.

This online resource fair will provide an overview of national adaptive sports and recreation organizations, current Cure SMA resource guides, as well as information on how to start a new program in your area. It will also feature an informative panel discussion.

Adaptive Recreation Panel Webinar

You can now view the recording of the Adaptive Recreation Panel Webinar, where you’ll hear from adults with SMA, parents, and a topic expert who stay active through adaptive recreation like hunting, skiing, art, and gaming as they share their stories and advice for finding programs near you. Panelists included:

Doug McCullough, Water Skiing
Janelle Fiesta, Digital Art
Corey Ragan, Hunting
Ed Bronsdon, Snow Skiing & Cycling
Bronsdon, Snow Skiing & Cycling
Kristen Farrell, Snow Skiing
Steve Spohn, Gaming

Adaptive Sports Panel Webinar

Check out the recording for the Adaptive Sports Panel Webinar, where you can hear firsthand from individuals with SMA and other experts who actively participate in and/or lead adaptive sports programs. Panelists included:

Charlie Zerzan, Wheelchair Basketball Player
Marley Robinson, Volt Hockey Player
Alyssa Briglio, Power Soccer Player
Kurt Beach, Head Athletic Trainer for the Adaptive Sports Program, University of Michigan
Ed Bronsdon, former Executive Director of Outdoors for All Foundation

Thank you to Novartis for their generous sponsorship of the Virtual Adaptive Sports & Recreation Program.

Virtual Education Program

Going Away to College Panel Webinar

If you or your teen are headed off to college soon, register today for the Going Away to College Panel Webinar, which will be taking place on Thursday, March 19 at 8:00pm ET / 7:00pm CT / 5:00pm PT.

This event will bring together a panel of young adults with SMA who will cover all of the important information to know about going away to college. Panelist information will be available in the coming months!

You will be able to submit questions when you register, or you may email questions to [email protected] by Friday, March 6 to have them addressed during the webinar.

Cure SMA would like to thank Scholar Rock for their generous sponsorship of the Virtual Education Program.