Cure SMA is driven by the efforts of our local volunteers. Volunteering is a great way to touch the lives of individuals with SMA and their families, while also creating a caring community.

Each year, Cure SMA hosts more than 400 local events, the Annual SMA Conference, and sends out thousands of resources including information packets, care packages, and equipment.  Without our wonderful volunteers—made up of chapter leaders, event organizers, conference volunteers, office volunteers, and families—the success of these events and programs would not be possible.

Types of Volunteers

Cure SMA has four main types of volunteers: chapter leaders, event organizers and volunteers, conference volunteers, and office volunteers.


Our chapter leaders are the volunteers who represent Cure SMA on the ground. These leaders support the mission of Cure SMA in several ways, such as providing a base of community and support for individuals with SMA and their families and by organizing fundraising events for Cure SMA. Check to see if there is a Cure SMA Chapter in your area, then contact us at [email protected]. We will put you in touch with your local chapter leaders, and if there isn’t a chapter in your area, we can help you get involved!


Event organizers and volunteers host events across the country such as Walk-n-Rolls, golf events, galas. Our volunteers make each event a success! Volunteers also plan events or assist on event day. Find out how you can fundraise or plan an event in your area. Or, contact us to find out if events in your area are recruiting volunteers.


Conference volunteers return year-after-year to help during the biggest event of the year. Cure SMA volunteers leave their jobs and families at home to help individuals with SMA and their families have a memorable conference experience! Our volunteers take great pride in helping to ensure that at each conference they attend, everyone leaves with the feeling that this was the best conference yet. Without these volunteers, our conference would be nowhere near what it is today!


Our National office is in Elk Grove Village, IL, a suburb of Chicago. Cure SMA office volunteers assist with various projects, such as mailings, labeling care package items, sorting inventory, loading the conference truck, and much more. Office volunteers help us give the SMA community the resources they need. There are lots of ways to help us out. Email [email protected] to learn more.