Advocacy

State and federal policies impact nearly all aspects of life for people with spinal muscular atrophy (SMA). Advocacy is critical in advancing SMA-related policies, and the voices of individuals with SMA and their families are incredibly important when reaching out to lawmakers who can have an impact on the community.

SMA Advocacy Priorities

Cure SMA actively works to advance Cure SMA's Greater Independence agenda and the following policy goals of the SMA community. Click on the images below for information on each key priority and Cure SMA’s position.

Why Is Advocacy Important?

Cure SMA Advocacy Activities

Below please find some advocacy resources for your use and advocacy actions that Cure SMA has taken on behalf of the SMA community.

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