A Community’s Unwavering Love: How the Stickane Family Started a Foundation to Cure Spinal Muscular Atrophy

Stickane Family Photo
Luke 181 Conference Pic 2023

In a world where adversity often brings out the best in people, the Stickane family of Southlake, TX stands as a shining example of unwavering love and resilience.

Their journey began when their middle son, Luke, was diagnosed with SMA in 2017. Luke's diagnosis with SMA was a turning point for the Stickane family and though the diagnosis journey was difficult, their determination and love for Luke compelled them to take immediate action.

In the face of a new way of life, the Stickanes founded the Luke 18:1 Foundation, a non-profit organization dedicated to raising awareness about SMA, funding research for a cure, and providing support to families affected by the disease. The foundation's mission was clear: to make a tangible difference in the lives of those living with SMA.

In 2023, their tireless efforts culminated in two remarkable events, the Links 4 Luke Golf Tournament and Mahjong Madness Tournament, raising an astounding $500,000 for Cure SMA.

One of the key milestones of the Luke 18:1 Foundation's journey was starting the Links 4 Luke Golf Tournament, typically held in the spring each year in Southlake, TX. This event is more than just a golf tournament; it is a testament to the Stickane family and their local community’s unwavering commitment to finding a cure for SMA. The success of the tournament year after year has been astounding. Through generous donations, sponsorships, and participant contributions, the Luke 18:1 Foundation has been able to raise an impressive $2,000,000 since its inception. In April 2023, the event was held once again, and the Foundation generously granted Cure SMA a gift of $500,181 at the 2023 Annual SMA Conference in June this year at Walt Disney World.

This significant contribution will undoubtedly accelerate efforts to find a cure for SMA and improve the lives of those living with the disease. It is a testament to the Stickanes’ unwavering determination to make a difference in the SMA community.

The Stickane family's journey from SMA diagnosis to founding the Luke 18:1 Foundation and hosting a series of successful golf tournaments and fundraising events is a powerful example of what can be achieved when love, determination, and community support come together. Their story serves as a reminder to us all that in the face of strife, we have the power to make a positive and profound impact on the lives of others.

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