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Latest News
January 26, 2012   New Winter Edition of the Families of Spinal Muscular Atrophy Directions Newsletter is Now Available Online.
The Winter 2011 edition of the family support and SMA community newsletter Directions is now available.
 
January 25, 2012   Deadline for Early Registration for the Annual Spinal Muscular Atrophy Conference Approaches.
This head start early registration fee will be valid through February 1st, 2012, at 11:59pm Central Standard Time, when registration prices will increase.
 
January 19, 2012   Families of Spinal Muscular Atrophy Welcomes the New Carolinas Chapter and Satellite Chapter Capital Region of Greater New York.
 
January 18, 2012   Update on the Spinal Muscular Atrophy Drug Development Pipeline from Families of SMA.
 
January 13, 2012   Families of SMA Receives Funding for Bath Pads for Care Packages from The Joseph Lillo Spinal Muscular Atrophy Foundation.
Families of SMA is incredibly grateful to receive funding to purchase a 150 of the Leacho Safer Bather Infant Bath Pads, which are one of the items in all Newly Diagnosed Type I Care Packages.
 
January 12, 2012   Families of SMA is Proud to Have Contributed Funding to Key Spinal Muscular Atrophy Research Results Published in 2011.
Funding for this work was awarded to 14 institutions resulting in 13 research articles published with FSMA support in 2011.
 
January 10, 2012   Families of Spinal Muscular Atrophy Releases SMA Care Series Booklet on Nutrition Basics for SMA.
“Nutrition Basics: Fostering Health and Growth for Spinal Muscular Atrophy” is Families of SMA’s newest release of the SMA Care Series Booklets, which are provided to all newly diagnosed families, as well as SMA Care Providers worldwide.
 
January 4, 2012   Biogen Idec and Isis Pharmaceuticals Announce Global Collaboration for Antisense Program Targeting Spinal Muscular Atrophy.
 

For Newly Diagnosed Information and Care Packages call us at
(800) 886-1762 or email
infopack@fsma.org

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