Events Events Events

It's not too early to
start planning spring events!

Find an event in your area, learn how to start
an event, and help raise funds to advance
SMA research and family support.

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Conference Conference Conference

The Annual
SMA Conference.

Our 2016 Annual SMA Conference will be
held June 16-19, at the Disney Land Hotel in
Southern California!

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About SMA About SMA About SMA

About spinal muscular atrophy (SMA)

SMA is a genetic disease that affects the motor neuron cells in the spinal cord, impacting the ability to walk, eat, or breathe.

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Family Support Family Support Family Support

Our community is active, engaged, and hopeful

Through information packets, care packages, local chapters, equipment, and resources, we support families today.

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Pipeline Pipeline Pipeline

We can see a future
without SMA.

We now have 18 programs in the SMA drug
pipeline. Together, we're making real
progress toward a treatment and a cure.

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Cure SMA Awards $140,000 Grant to Megerditch Kiledjian, PhD, of Rutgers

Cure SMA Awards $140,000 Grant to Megerditch Kiledjian, PhD, of Rutgers

Cure SMA has awarded a $140,000 research grant to Megerditch Kiledjian, PhD, at Rutgers, The State University of New Jersey, for his project,...

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Senate HELP Committee Passes Innovation Bills

Senate HELP Committee Passes Innovation Bills

The Senate Health, Education, Labor and Pensions (HELP) Committee has passed 7 bills out of committee as part of its

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Update on 21st Century Cures/Innovation: the Senate's

Update on 21st Century Cures/Innovation: the Senate's "Step-by-Step" Approach

Cure SMA has been carefully monitoring the consideration of 21st Century Cures on Capitol Hill. As you know, the House

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Cure SMA Receives Generous Support from the Bugenske Family and Leo’s Pride

Cure SMA Receives Generous Support from the Bugenske Family and Leo’s Pride

Cure SMA would like to thank the Bugenske Family and Leo’s Pride for their generous support of Cure SMA’s equipment pool and...

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Cure SMA-Funded Researcher Publishes Paper on Biomarker Study

Cure SMA-Funded Researcher Publishes Paper on Biomarker Study

Cure SMA-funded researcher Stephen Kolb has published a...

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