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Spinraza Access and Updates

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Learn more about the approval of Spinraza.

We recently sat down with SMA researchers, Cure SMA staff, and families in our community to talk about the approval of Spinraza (nusinersen). Listen to their words of gratitude and excitement.

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Spring Events

Spring event season is about to kick off. Join us! Find an upcoming event in your area, or host your own event.

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RUSP Nomination for SMA Accepted into Evidence Review

RUSP Nomination for SMA Accepted into Evidence Review

The Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) announced that they have accepted spinal...

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Cytokinetics Receives FDA Orphan Drug Designation for CK-2127107 for SMA

Cytokinetics Receives FDA Orphan Drug Designation for CK-2127107 for SMA

Cytokinetics, Inc. recently announced that the Office of Orphan Products Development of the U.S. Food and Drug Administration (FDA) has granted...

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Cure SMA Awards $140,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires, Argentina

Cure SMA Awards $140,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires, Argentina

Cure SMA and FAME (Families of SMA, Argentina) have awarded a $140,000 research grant to Alberto Kornblihtt, PhD, at the Universidad de Buenos...

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Cure SMA Announces 2017 Family Friendly Poster Session Presenters

Cure SMA Announces 2017 Family Friendly Poster Session Presenters

We’ve recently seen significant advances in SMA research come to fruition, and with 17 drug programs in development, including five in...

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Cure SMA Awards $75,000 Grant to Stephen J. Kolb, PhD, Ohio State University

Cure SMA Awards $75,000 Grant to Stephen J. Kolb, PhD, Ohio State University

Cure SMA has awarded a $75,000 research grant Stephen J. Kolb at Ohio State University, for his project, “Arrested Development or...

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