About SMA About SMA About SMA

About spinal muscular atrophy (SMA)

SMA is a genetic disease that affects the motor neuron cells in the spinal cord, impacting the ability to walk, eat, or breathe.

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Conference Conference Conference

The Annual SMA Conference

At the largest SMA conference in the world, we bring together families, medical providers, and researchers to learn and collaborate.

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Events Events Events

Spring event season is in full swing

Find an event in your area, learn how to start an event, and help raise funds to advance SMA research and family support.

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Family Support Family Support Family Support

Our community is active, engaged, and hopeful

Through information packets, care packages, local chapters, equipment, and resources, we support families today.

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Pipeline Pipeline Pipeline

We can see a future without SMA

SMA is the number one genetic cause of death for infants. But together, we’re making real progress toward a treatment and cure.

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New 21st Century Cures Discussion Draft Released

The US House of Representatives Energy and Commerce Committee has released a new 21st Century Cures discussion draft. This is a revised and...

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Registration for the 2015 Annual SMA Conference Closes in Two Weeks

Registration for the 2015 Annual SMA Conference Closes in Two Weeks

The deadline to register for our Annual SMA Conference is just two weeks away. Registration will close on Friday, May 9. Over 1,000 people have...

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Cure SMA Publishes New Care Series Booklet on Musculoskeletal System

Cure SMA Publishes New Care Series Booklet on Musculoskeletal System

Cure SMA has recently released an updated version of our latest care series booklet, The Musculoskeletal System.

As with all our care...

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Spring 2015 Issue of Compass Now Available

Spring 2015 Issue of Compass Now Available

The Spring 2015 issue of Compass is now available online.

As part...

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Annual SMA Conference to Feature Panel of Leading SMA Drug Experts

Annual SMA Conference to Feature Panel of Leading SMA Drug Experts

The Annual SMA Conference will bring together well over a thousand families and researchers from around the world. During the conference,...

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