Events Events Events

It's not too early to
start planning spring events!

Find an event in your area, learn how to start
an event, and help raise funds to advance
SMA research and family support.

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Conference Conference Conference

The Annual
SMA Conference.

Our 2016 Annual SMA Conference will be
held June 16-19, at the Disney Land Hotel in
Southern California!

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About SMA About SMA About SMA

About spinal muscular atrophy (SMA)

SMA is a genetic disease that affects the motor neuron cells in the spinal cord, impacting the ability to walk, eat, or breathe.

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Family Support Family Support Family Support

Our community is active, engaged, and hopeful

Through information packets, care packages, local chapters, equipment, and resources, we support families today.

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Pipeline Pipeline Pipeline

We can see a future
without SMA.

We now have 18 programs in the SMA drug
pipeline. Together, we're making real
progress toward a treatment and a cure.

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Cure SMA Announces 2016 Family Friendly Poster Session Presenters

Cure SMA Announces 2016 Family Friendly Poster Session Presenters

The Family Friendly Research Poster Session is one of the most anticipated events of our

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Cure SMA Awards $140,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

Cure SMA Awards $140,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

Cure SMA has awarded a $140,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University for her project, “Assessing the...

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Ionis Releases Data Update from Phase 2 Study in Infants with SMA

Ionis Pharmaceuticals provided an update on its ongoing open-label Phase 2 clinical study of nusinersen in infants with spinal muscular atrophy...

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Cure SMA and the SMA Community Featured by Astellas Pharmaceuticals

Cure SMA and the SMA Community Featured by Astellas Pharmaceuticals

Cure SMA is featured by Astellas Pharmaceuticals as part of their new Changing...

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Annual SMA Conference to Host Panels on NDA Process and SMA Drugs in Development

Annual SMA Conference to Host Panels on NDA Process and SMA Drugs in Development

One of the most significant aspects of the Annual SMA Conference is the bringing together of families and researchers in the same event. The...

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