Spinraza Access and Sites
We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.
While advocating for newborn screening of SMA on Capitol Hill, I met a little boy who had SMA Type 1, just like my son Micah. Unlike Micah, his parents knew he had SMA at birth and he started receiving treatment at about one month old. The difference between this little boy and Micah was profound. He walked up to me and gave me a high five. At that moment I realized that the fight was not over.
Click the donate button to help families like Micah's!
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