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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2019 Annual SMA Conference

Thanks for a wonderful 2018 Annual SMA Conference! We hope to see you at Disneyland!

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Events Events Events

Spring Events

Spring events season is around the corner. Join us! Find an upcoming event in your area, or host your own event.

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Show Your Rare. Show You Care.

Show Your Rare. Show You Care.

1 in 20 people will live with a rare disease at some point in their life. Rare Disease Day improves knowledge amongst the...

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Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

Cure SMA has awarded a $150,000 research grant to Laxman Gangwani, PhD, at the Texas Tech University Health Sciences Center, for his project...

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Register for Cure SMA's Advocacy 101 Webinar: Learn How to Make a Difference

Register for Cure SMA's Advocacy 101 Webinar: Learn How to Make a Difference

On Wednesday, February 20th at 12pm CST (10am PST/11am MST/1pm EST) Cure SMA’s Policy and Advocacy team will hold a webinar to update the...

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Cure SMA is Thrilled to Launch Its New and Refreshed Endurance Program: Team Cure SMA

Cure SMA is Thrilled to Launch Its New and Refreshed Endurance Program: Team Cure SMA

Start 2019 Strong by becoming a Team Cure SMA runner, registering a team or donating to a race...

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A Look Ahead to 2019 – From Cure SMA President, Kenneth Hobby

A Look Ahead to 2019 – From Cure SMA President, Kenneth Hobby

Dear SMA Community,

At the start of a new year, many of us begin to plan for the next 12 months. We anticipate the possibility of new...

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