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Spinraza Access and Sites

We will continue to update our community on administration sites, insurance coverage, and community resources and support programs for Spinraza.

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Conference Conference Conference

2019 Annual SMA Conference

Thanks for a wonderful 2018 Annual SMA Conference! We hope to see you at Disneyland!

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Events Events Events

Fall Events

Fall event season is in full swing. Join us! Find an upcoming event in your area, or host your own event.

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Community Spotlight: The Lasko Family

Community Spotlight: The Lasko Family

After Max began receiving Spinraza in 2017, we wanted to do our part to help ensure that children born with SMA would...

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SMA Newborn Screening Advancements

SMA Newborn Screening Advancements

The first FDA approval of a therapy for SMA has created an opportunity for our community to move forward on another of our long-term priorities:...

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New York to Implement Newborn Screening for SMA October 1st

New York to Implement Newborn Screening for SMA October 1st

New York State will screen every child for SMA beginning October 1, according to the New York State Department of Health. New York joins...

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Sweet Baby Zane Funds New Equipment Pool Item

Sweet Baby Zane Funds New Equipment Pool Item

Cure SMA is excited to announce that 12 new Panthera pediatric lightweight wheelchairs have been purchased thanks to generous funding from Sweet...

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Cure SMA Receives Generous Donation from the Cash Scanlon-Philips Foundation

Cure SMA Receives Generous Donation from the Cash Scanlon-Philips Foundation

Cure SMA would like to thank the Cash Scanlon-Philips Foundation for their generous donation...

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