February 22, 2019

Arkansas and Florida Adopt SMA Newborn Screening

We are thrilled to share that both Arkansas and Florida recently adopted SMA to their state newborn screening panels! They now join the growing...

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February 21, 2019

Community Spotlight: Amber Bosselman

Amber Bosselman is your typical 22-year-old college senior. She is currently studying psychology in Idaho and planning to get her master’s...

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February 14, 2019

Show Your Rare. Show You Care.

1 in 20 people will live with a rare disease at some point in their life. Rare Disease Day improves knowledge amongst the...

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February 12, 2019

Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

Cure SMA has awarded a $150,000 research grant to Laxman Gangwani, PhD, at the Texas Tech University Health Sciences Center, for his project...

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February 6, 2019

Register for Cure SMA's Advocacy 101 Webinar: Learn How to Make a Difference

On Wednesday, February 20th at 12pm CST (10am PST/11am MST/1pm EST) Cure SMA’s Policy and Advocacy team will hold a webinar to update the...

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