


February 14, 2019
Show Your Rare. Show You Care.
1 in 20 people will live with a rare disease at some point in their life. Rare Disease Day improves knowledge amongst the...
February 12, 2019
Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University
Cure SMA has awarded a $150,000 research grant to Laxman Gangwani, PhD, at the Texas Tech University Health Sciences Center, for his project...
February 6, 2019
Register for Cure SMA's Advocacy 101 Webinar: Learn How to Make a Difference
On Wednesday, February 20th at 12pm CST (10am PST/11am MST/1pm EST) Cure SMA’s Policy and Advocacy team will hold a webinar to update the...
February 6, 2019
Cure SMA is Thrilled to Launch Its New and Refreshed Endurance Program: Team Cure SMA
Start 2019 Strong by becoming a Team Cure SMA runner, registering a team or donating to a race...
January 30, 2019
A Look Ahead to 2019 – From Cure SMA President, Kenneth Hobby
Dear SMA Community,
At the start of a new year, many of us begin to plan for the next 12 months. We anticipate the possibility of new...
I'm really excited about being involved with Cure SMA, and optimistic about the improvements, changes, and programs I've been seeing since "Families of SMA" because "Cure SMA". It feels empowering to have an influential organization, with such expansive outreach, supporting the needs of our community.
— Kristen Smith, New Jersey. Kristen lives with SMA type 3.
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