News

February 16, 2018

Cure SMA Receives Generous Gift

Cure SMA is extremely pleased to announce a generous $620,000 gift has been made to the organization. The donation was made anonymously in honor of William N. Kanehann. Billy had SMA and died in 2013 at the age of 23. We are grateful for this amazing donation in memory of his life.

This gift will be dedicated to supporting new...

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Topics: Community & Awareness, Support & Care, Front Page News

February 14, 2018

Biogen Releases Statement on CHERISH Data and Plans for New Clinical Research

Biogen Releases Statement on CHERISH Data and Plans for New Clinical Research

Biogen has provided the following community statement on the final results from CHERISH, a Phase 3 study of SPINRAZA. 

Dear Members of the SMA community,

This past December marked one year since the FDA approval of SPINRAZA® (nusinersen), the first and only treatment...

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Topics: Clinical Trials, Research, Front Page News

February 14, 2018

Additional Funding for SMA Care Centers Announced

Cure SMA is pleased to announce the second round of grants from $450,000 in funding, awarded to a total of 9 sites to help increase capacity at SMA treatment centers across the US.

In January 2018, Cure SMA selected five additional treatment centers, totaling $200,000, to...

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Topics: Support & Care, Our Impact, Front Page News

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