News

July 25, 2017

Call to Action: Senate Expected to Vote on Healthcare Bill Today

Call to Action: Senate Expected to Vote on Healthcare Bill Today

Today, members of the Senate are scheduled to begin voting on the Better Care Reconciliation Act (“Better Care Act”) of 2017. This is the Senate’s version of legislation modifying key parts of the Patient Protection and Affordable Care Act (ACA) in response to the American...

READ MORE   |  

Topics: Front Page News

July 19, 2017

2017 Annual SMA Conference Recap

2017 Annual SMA Conference Recap

Thank you to everyone who attended the 2017 Annual SMA Conference at Disney’s Contemporary Resort in Orlando, FL; it was truly a magical weekend of community, research and fun!

While the final numbers are still being counted, we are happy to announce that, including on-site...

READ MORE   |  

Topics: Conference, Front Page News

July 10, 2017

Missouri is the First State to Institute Newborn Screening for Spinal Muscular Atrophy

Governor Eric Greitens today signed into law Missouri Senate Bill 50, instituting newborn screening for spinal muscular atrophy (SMA). The bill makes Missouri the first state in the country to screen all newborns for SMA. The legislation was sponsored by Representative Becky Ruth, a legislator with a longstanding commitment to expanding...

READ MORE   |  

Topics: Advocacy, Front Page News

Items 1 - 3 of 366  12345678910Next

© 2014 Cure SMA | Privacy Policy

Powered by Blackbaud
nonprofit software