News

July 1, 2019

Biogen Announces New NURTURE Data at the 2019 Annual SMA Conference

Biogen Announces New NURTURE Data at the 2019 Annual SMA Conference

Biogen today announced new results from the NURTURE study, adding data to the longest study of spinal muscular atrophy (SMA) in pre-symptomatic...

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Topics: Clinical Trials, Research, Front Page News

June 28, 2019

Updated SMA Drug Pipeline Now Available

Updated SMA Drug Pipeline Now Available

We’ve recently released an update to the SMA drug pipeline. This latest version includes:

  • 23 active programs, including two approved therapies.
  • 15 pharmaceutical partners.
  • 6 programs in clinical trials.
  • An ever-increasing breadth of potential...

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Topics: Our Impact, Research, Front Page News

June 28, 2019

Cytokinetics Releases New Data from Reldesemtiv Clinical Study at the 2019 Annual SMA Conference

Cytokinetics Releases New Data from Reldesemtiv Clinical Study at the 2019 Annual SMA Conference

Cytokinetics, Incorporated, today announced that data from two preclinical studies of reldesemtiv were presented at the 2019 Annual Cure SMA...

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Topics: Clinical Trials, Research, Front Page News

June 26, 2019

What People Are Saying: 2019 North Jersey Walk-n-Roll

What People Are Saying: 2019 North Jersey Walk-n-Roll

The North Jersey Cure SMA Chapter held their 4th annual North Jersey Walk-n-Roll on June 22, 2019 at the Roosevelt Park. Walk-n-Roll is a...

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Topics: Community & Awareness, Events & Fundraising, Front Page News

June 26, 2019

The 2019 Annual SMA Conference is Here!

The 2019 Annual SMA Conference is Here!

The 2019 Annual SMA Conference, now in its 31st year, is set to kick off on June 28 and continue into a weekend full of programs and events that bring families, researchers and healthcare professionals...

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Topics: Conference, Front Page News

June 25, 2019

Cure SMA Receives $150,000 Grant From the Oscar G and Elsa S Mayer Family Foundation

Cure SMA is pleased to announce receipt of $150,000 grant over three years, awarded by the Oscar G. and Elsa S. Mayer Family Foundation to support continued development of the SMA Care Center Network.

The mission of the SMA Care Center Network is to:

  1. Improve SMA clinical care and disease management, leading to creation...

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Topics: Support & Care, Front Page News

June 21, 2019

Thank You to Our 2019 Annual SMA Conference Sponsors!

Thank you to the following sponsors who are generously supporting the 2019 Annual SMA Conference. This one-of-a-kind event would not be possible without your support!

For more information about the below companies, please visit our

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Topics: Conference, Front Page News

June 20, 2019

Thank You to Our 2019 Annual SMA Conference Exhibitors!

Thank you to the below exhibitors who are generously supporting the 2019 Annual SMA Conference. This incredible and unique event would not be possible without your support! 

For more information on the following companies, please visit our

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Topics: Conference, Front Page News

June 17, 2019

Community Spotlight: Laura Watson

Community Spotlight: Laura Watson

Laura Watson is team captain of Laura's Dream Team and fundraising committee co-chair of the North New Jersey Cure SMA Chapter. On Saturday, June 22, 2019, Laura is joining over 150 people at the

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Topics: Community & Awareness, Front Page News

June 11, 2019

The 2019 Annual SMA Conference Booklet is Now Posted Online

The 2019 Annual SMA Conference booklet is now available for download. The booklet includes information on workshops, special events and details of the Annual SMA Conference, including:

1. A complete schedule, full...

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Topics: Conference, Front Page News

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