News

September 19, 2017

Novartis Releases Update on LMI070 (Branaplam) Clinical Trial

Novartis Releases Update on LMI070 (Branaplam) Clinical Trial

Novartis has released the following update for the LMI070 (branaplam) clinical trial, on behalf of the program team. 

Dear SMA community,

For years, our researchers have been working hard to develop a new treatment for SMA. One promising compound in our neuroscience...

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Topics: Clinical Trials, Research, Front Page News

September 18, 2017

Applications for Cure SMA Medical Advisory Council Due October 15th

Cure SMA is expanding its role in spinal muscular atrophy medical affairs at the national level through its Medical Advisory Council (MAC). The MAC sets the agenda for proactive, creative, and collaborative leadership on issues that improve the quality of medical care for those affected by SMA.

The focus of the Council is to build on...

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Topics: Support & Care, Front Page News

September 15, 2017

Genentech/Roche Releases Clinical Trial Update for RG7916

Genentech/Roche Releases Clinical Trial Update for RG7916

Genentech/Roche recently provided the following community statement with clinical trial updates for SUNFISH (Type 2/3). The SUNFISH trial is advancing to part two, which is designed to be a pivotal, marketing registration trial. 

Dear SMA Community,

We are focused on...

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Topics: Clinical Trials, Front Page News

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