7th Annual Hope on the Hill Congressional Dinner Achieves $1 Million Milestone

This year’s 7th Annual “Hope on the Hill” Congressional Dinner will be held on Wednesday, November 29, bringing together families, government, and industry to mark the first-ever FDA approval of a treatment for SMA, and look forward to the next stages for our community. Through this event, we hope to build momentum in the Washington D.C. area to increase awareness of our mutual goals in advancing treatments for SMA and improving patient care.

We are excited to announce that Rep. Greg Walden, Chairman of the United States House of Representatives, Committee on Energy and Commerce will be the keynote speaker at this year’s event.

A number of special guests will join us, including Rep. Sean Duffy, Rep. Tom Emmer, Rep. Jeb Hensarling, Rep. Bill Huizenga, Rep. Rosa DeLauro, Rep. Erik Paulsen, Rep. Jamie Raskin, Rep. Linda Sanchez, Rep. Fred Upton, Rep. Greg Walden, and Rep. Mimi Walters. As we reach the end of a year featuring historic news for several of the drugs in the pipeline, including the first-ever approved treatment for SMA, we remain focused on educating and engaging all groups in our community: families affected by SMA, governmental and regulatory groups, insurance and payers, and the biotech and pharmaceutical companies that are developing and testing SMA drugs. It is more important now than ever to make certain that regulators, payers, and industry partners understand the impact of SMA.

Around the Hope on the Hill event, we will also be hosting meetings with our collaborative industry group, our newborn screening coalition, and others. These meetings will allow us to further our advocacy efforts.

Thank You

Already, this year’s event has raised nearly $200,000 – helping the event raise more than $1 million over the last seven years. Special thanks to the sponsors who have made this event possible:

Discovery Sponsors



Quest Diagnostics



To see a complete list of sponsors, please visit the 7th Annual Hope on the Hill website.

Pictured above: Rep. Erik Paulsen and Beverly & Dan Venedam at the 6th Annual Hope on the Hill Congressional Dinner. 

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