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Special Session Highlights from 2024 Annual SMA Research & Clinical Care Meeting

July 15, 2024
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Each year, Cure SMA collaborates with our Scientific Advisory Board to plan a Special Session to be held during the Annual Research & Clinical Care […]

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Congressional Action Recognizes Unmet Needs of SMA Community

July 12, 2024
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This week, a key congressional committee recognized the unmet, everyday living needs of individuals with spinal muscular atrophy (SMA) by urging the National Institutes of […]

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SMA Highlights: Updates from Biogen

July 12, 2024
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On July 12, 2024, Biogen shared highlights and updates from the 2024 Annual SMA Conference, including their collaboration with Delta Flight Products and their sponsorship […]

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Clinical Research and Drug Development Session Highlights from 2024 Annual SMA Research & Clinical Care Meeting

July 11, 2024
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During the first week of June, SMA researchers and clinicians from around the world met in Austin, Texas, for the 28th Annual SMA Research & […]

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Spring 2024 Issue of Compass Now Available

June 26, 2024
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The Spring 2024 issue of Compass is now available online.   This year, we are proud to announce six new research grants, totaling $750,000, to […]

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Thank You for an Amazing 2024 Annual SMA Conference!

June 26, 2024
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Thank you to everyone who attended the 2024 Annual SMA Conference at the JW Marriott in Austin, Texas! It was an impactful weekend of opportunities […]

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SMA Researchers and Clinicians from Around the World Gather at the 28th Annual SMA Research & Clinical Care Meeting

June 25, 2024
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During the first week of June, SMA researchers and clinicians from around the world met in Austin, Texas, for the 28th Annual SMA Research & […]

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Cure SMA Announces Additional $750,000 in Basic Research Funding

June 8, 2024
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At the Annual SMA Research and Clinical Care Meeting, Cure SMA highlighted six new basic research grants totalling $750,000. Cure SMA also announced another $750,000 […]

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Five-Year Data for Genentech’s Evrysdi Show the Majority of Treated Children With a Severe Form of SMA Achieved or Maintained the Ability to Sit, Stand or Walk

June 7, 2024
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Summary of Data Presented After 5 years of treatment, 91% of children were alive – without treatment, children with Type 1 SMA would not be […]

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Fall 2024 Walk-n-Roll Registration is Open

May 31, 2024
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Cure SMA’s Fall 2024 Walk-n-Roll events are open! By participating in our Walk-n-Roll, you can make a real difference in the lives of those affected by […]

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