Originally published on October 22, 2013.
Cure SMA is excited to announce our continued partnership with BAYADA Pediatrics for the signature Walk-n-Roll Program.
This year, Cure SMA Chapters and families will host 47 Walk-n-Roll events throughout the US. Walk-n-Rolls are the signature event for the organization by bringing SMA families together and raising huge awareness throughout local communities. In addition, this program raises over $1.5 million for Cure SMA allowing the organization to fund new SMA research and crucial family support programs. Cure SMA is grateful for the tremendous support of BAYADA Pediatrics for becoming a National Walk-n-Roll Sponsor for a second year.
Note from BAYADA Pediatrics:
BAYADA Pediatrics Renews National Sponsorship with Cure SMA
BAYADA Pediatrics is proud to renew its partnership with Cure SMA, as they support our dedication to helping families affected by SMA and to fund research leading to a treatment, and eventually, a cure.
Through this initiative, BAYADA Pediatrics is looking forward to continuing to work with Cure SMA to strengthen their clinical expertise in caring for children with SMA.
Throughout the past year, in the true spirit of providing community service where they live and work, BAYADA Pediatrics offices came together to raise funds and awareness for Cure SMA. BAYADA staff and their families, donned in their signature BAYADA red, were honored to be able to have a physical presence at multiple Cure SMA Walk-n-Roll events held in California, Colorado, Delaware, New England, Minnesota, New Jersey, New York, North Carolina, and Pennsylvania.
The partnership allowed BAYADA clinicians to participate in the Cure SMA national conference. In addition, BAYADA Pediatrics proudly played host to an Cure SMA delegation who travelled from Illinois to the Philadelphia area to learn more about their exceptional home health care services. The delegation had the opportunity to tour a Simulation Lab, which uses computer-generated, realistic mannequins to train home health care nurses. They also had the opportunity to witness home health care nurses providing care during home visits with pediatric clients.
This year, BAYADA President and Founder Mark Baiada has again agreed to generously support the Walk-n-Roll program as a national sponsor.
“This year, we hope to expand our participation and have even more BAYADA offices become involved in local Cure SMA events,” shared BAYADA Pediatric Practice Leader Karen Buttler. “It’s a great opportunity to demonstrate The BAYADA Way in action, to network with other families affected by SMA, and to educate families and health care professionals about the high quality home health care services BAYADA Pediatrics can provide for children with SMA.”
Dr. Al Freedman, psychologist, member of the Cure SMA Medical Advisory Board, and father of Jack, an 18-year old client with SMA, expressed his appreciation to everyone who has helped support Cure SMA and who has made a difference in the lives of children and families affected by SMA.
“Everybody who cares for families like ours needs to remember that we’re scared,” said Al. “We’re scared every day. And we need help. Every time someone from BAYADA helps us, they are making us feel supported, and less scared, and more hopeful that we can take care of Jack responsibly and that we can give him a life that is meaningful.”
To learn more about BAYADA Pediatrics, please contact BAYADA Community Liaison Amy Welde [email protected] or call 609.747.8617.
For more information about the Walk-n-Roll Program, contact Cure SMA at [email protected] or call the National Office at 800.886.1762.
Cure SMA has 31 Chapters throughout the United States, and over 105,000 members and supporters. Through these Chapters, our organization is able to provide local family support to thousands of families each year affected by SMA. Along with family support, Chapters also raise awareness about SMA throughout their local community and coordinate numerous fundraisers to advance SMA research. For more information, visit www.curesma.org.