Cure SMA Announces Additional Event Cancellations; No Changes to Plans and Recommendations for Annual SMA Conference

As news about the Coronavirus (COVID-19) continues to evolve, Cure SMA has now decided to cancel all events (i.e., galas, dinners, Walk-n-Rolls, Summits of Strength) through the end of May. This decision took into account the most recent recommendation from the Centers for Disease Control and Prevention (CDC) to limit or cancel all gatherings of 10 people or more for the next 8 weeks. Recognizing the time and effort that our event organizers and families put into planning and preparing for these events in advance, at this time we hope to make sure that the focus of the SMA community remains on staying healthy.

We continue to evaluate the potential impact of COVID-19 on the upcoming 2020 Annual SMA Conference in Orlando, Fla. (June 11-14, 2020). The decision will be made in the best interest of the entire SMA community, as your health, safety, and well-being continue to be our top priority.

In the meantime, if you have already registered for the 2020 Annual SMA Conference and booked your travel and accommodations, we recommend that you keep your plans in place. In the event of a cancellation of the 2020 Annual SMA Conference:

  • All Cure SMA registration fees will remain fully refundable.
  • Hotel reservations within the Cure SMA hotel room blocks can be cancelled up to six (6) days prior to the arrival date to receive a refund of the deposit.
  • Many airlines are now offering no change fees on booking new travel (please look at each airline policy closely to see what applies for you).
  • Cure SMA will work to support and cover non-refundable expenses that registrants may incur as a result of a Conference cancellation.

For information on the COVID-19 and general prevention measures, please refer back to Cure SMA’s Community Statement from March 9.

If you have any other questions, please reach out to [email protected].


Kenneth Hobby

President, Cure SMA

Mary Schroth, M.D.

Chief Medical Officer, Cure SMA

Jill Jarecki, Ph.D.

Chief Scientific Officer, Cure SMA

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