The US Senate is currently working on legislation to modify the Affordable Care Act. Though details of the Senate’s plan are not yet available, legislation could be released as early as Thursday or Friday of this week. As Senators consider various options it is important that they keep in mind the needs of people such as members of the SMA community. Please consider reaching out to your Senators (they can be found at the links below) and urge them to protect individuals with pre-existing conditions, and ensure patients with SMA retain access to essential services including those provided through Medicaid.

Contact your Senators

Cure SMA will continue to monitor the Senate’s work closely and will issue an alert to the community once additional detail or legislation is made available to ensure the voices of our SMA patients and families are heard in response.