Cure SMA is excited to announce that AveXis is returning as a National Premier Partner for 2018.
As part of their partnership, AveXis is generously supporting our Chapter Leader Summit, a full day of training and information-sharing for 70 chapter leaders from around the US, scheduled for April 2018. Many of the topics and training debuted at this summit will be rolled out to the full community at the Annual SMA Conference, furthering the impact of this important event.
In addition, AveXis will be sponsoring all walk-n-rolls, golf events, galas and awareness events for 2018, as well as the Hope on the Hill Congressional Dinner. AveXis is also a key participant in many of Cure SMA’s ongoing programs, including the SMA Industry Collaboration, the SMA Newborn Screening Coalition, and our bi-annual family newsletter, Directions. Finally, AveXis is also supporting the Annual SMA Conference as the 2018 Breakthrough Sponsor.
”AveXis has become one of our community’s most valued partners, and we are excited to have them back for another year of premier partnership” said Kenneth Hobby, president of Cure SMA. “The innovation of gene therapy is matched by their innovation in supporting our most cutting edge programs in newborn screening, industry collaboration, and community education. We thank them for their dedication to our community and look forward to another productive year together.”
Through collaboration with our partners, like AveXis, Cure SMA is working toward a world without SMA. On behalf of the entire community, we thank AveXis for their ongoing partnership.