Double your donation to help double Cure SMA’s Care Center Network
Care Centers guide our understanding of how SMA is changing, help us understand how care is being delivered, and help identify best practices in SMA treatment.
We currently have nearly 30 Care Centers across the U.S., and with your gift and the generous support of the Erin Trainor Memorial Fund, our goal is to double our number of Care Centers! Because of their commitment to ensure every newly diagnosed person has the highest quality care, the Erin Trainor Memorial Fund is generously matching all gifts made to the Care Center Network up to $350,000. The $700,000 total match investment will help SMA Care Centers across the country provide better access to treatments and will support comprehensive care plans for individuals that include nutrition, mental health care, and physical therapy.
We are currently 1/3 of the way to meeting our goal and we need your help to reach our target by the end of the Annual Conference when the match opportunity will conclude.
About the Erin Trainor Memorial Fund
In February 1994, Barbara and Gene Trainor lost their five-month-old daughter, Erin, to SMA Type 1. Since then, the Trainor family, friends, and colleagues have raised millions of dollars for Cure SMA through annual events such as the Chesapeake Crab Feast and the Chesapeake Charity Golf Classic. In addition, they have provided comfort to numerous families by forming the Cure SMA Chesapeake Chapter in Baltimore, Md. The ETMF is in honor of their daughter’s memory and seeks to strengthening the SMA community.
Erin would have been 27 years-old this year. While they still feel the loss, they are proud of the work that has been done and excited to see new Care Centers address so many children and adults with their various needs. For parents who receive a diagnosis now, their outcomes are hopeful, and they have made a renewed commitment to ensure they stay that way by increasing the Care Center Network of Cure SMA.