Originally published on July 30, 2014.
Thank you to our amazing Chapter Leaders and SMA families who spend countless hours planning these wonderful fundraising events in support of finding a treatment and a cure for spinal muscular atrophy.
Over the last two years, Cure SMA’s amazing chapter leaders and SMA families have raised $10 million to help fund the most promising research toward a treatment and cure for SMA. This funding has been critical in bringing our drug development pipeline to 15 programs, five of which are currently in clinical trials today. It has also allowed us to expand our research platform into clinical and care research. In addition to research, our organization continues to support families through our informational Caring Series booklets with the recently added booklet about the Musculoskeletal System, medical equipment pool, newly diagnosed care packages and The Annual SMA Conference.
Overall, we have had a great year for our Walk-n-Roll Program with 46 held through the country along with 21 dinner events, 27 golf tournaments, and numerous other fundraisers which brought SMA families together to raise funds and awareness while connecting with each other. It is because of these amazing SMA families, that we are able to provide the level of support and reach huge milestones in our SMA research progress.
We also had a couple of our long-standing events reach major landmarks for their events including the 10th Annual Western New York Walk-n-Roll, the 15th Annual Wannabe Charity Golf Tournament, the 10th Annual Lukie’s Fall Festival, the 10th Annual Lily Kennedy Golf Outing, the 10th Annual Michigan Run, Walk-n-Roll, the 10th Annual Tennessee Charity Golf Outing and the 10th Annual Jack Attack on SMA Walk-n-Roll.
Our spring fundraising season is in full swing. Find a Cure SMA event in your area today by visiting our Events Calendar!
It’s easy to register your team, edit your fundraising page and start collecting donations today.
Don’t see a planned event in your area, and would like to organize one, the Development Team at Cure SMA is here to help support your fundraising efforts.
Cure SMA has fundraising resources to help you from start to finish, including event manuals, templates for sponsorship packets, letters and flyers. In addition, we have promotional items including bracelets, banners, yard signs, temporary tattoos and balloons to enhance your next fundraiser.
Contact our Development Team at [email protected] or by calling 800.886.1762. We’re excited to help you get started and make your event one to remember.