Members of the Cure SMA Medical Advisory Council (MAC) are holding two days of meetings, November 7-8, at the Cure SMA national offices.

The MAC is one of the most highly respected bodies of SMA medical and clinical experts in the US, setting the agenda for proactive, creative, and collaborative leadership on issues that improve the quality of medical care for those affected by SMA. The MAC focuses on educating families, health care providers, and the public about SMA; expanding SMA standards of care; and translating positive research results into clinical practice.

Led by Dr. Mary Schroth—a leading pediatric pulmonologist, associate professor of pediatrics, and chair of the MAC—the meeting covers topics including:

  • Medical Professional Education: MAC members are discussing potential professional education opportunities to offer to medical professionals around the country to learn about SMA.
  • Clinical Care Grants: MAC members are evaluating nine clinical care grant applications to determine which grants will receive funding from Cure SMA.
  • Annual SMA Conference: MAC members are evaluating survey results and discussing new workshops, possible speakers, and long term conference goals.
  • SMA Care Series Booklets: MAC members are reviewing current care series booklets and looking at adding additional topics.

Our thanks to Dr. Schroth and all the MAC members for dedicating so much of their time and expertise to the SMA community.