New Advocacy Resource: Explore the Cure SMA State and Local Toolkit!

Make an Impact in Your State and Community

Cure SMA is proud to announce the launch of our brand-new State and Local Advocacy Toolkit, now available on the Advocacy webpage!

This interactive resource empowers individuals and families in the SMA community to take action and drive change at the local and state level. Whether you’re advocating for accessible policies, raising awareness, or connecting with decision-makers, this toolkit is designed to help you every step of the way.

Explore Your State
Hover over your state on the U.S. map to access a state-specific fact sheet and to send a message about SMA directly to your state leaders.

State & Local Issues Fact Sheets
Download ready-to-use materials on important issues, including:

  • Accessible parking, playgrounds, and bathrooms
  • Paid family caregiving
  • Rare disease representation

Take Action in Preparation for SMA Awareness Month
The toolkit includes an Action Alert and Sample Proclamation to help you request that your governor or mayor recognize SMA Awareness Month in your state or city.

Need Help with Local Advocacy?

Submit a request for assistance directly through the toolkit, and our team will help guide you.

Explore the Toolkit Now

Together, we can build more inclusive and supportive communities for everyone affected by SMA. Start exploring, take action, and share this resource with your network today!

 

The State & Local Advocacy Toolkit was created with support from Biogen and Genentech

The underlying grassroots engagement tool was made available through support from Genentech, Biogen, Novartis, and Scholar Rock.

 

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