On December 1, more than 120 people from the SMA community—including government, and industry partners—gathered for the 5th Annual “Hope on the Hill” Congressional Dinner. Several Members of Congress attended the dinner, including Speaker of the House Paul Ryan, Congressman Sean Duffy, Congressman Richard Hudson, Congressman Bill Huizenga, Congressman Erik Paulsen, Congressman David Schweikert, and Congressman Greg Walden

The evening included remarks from Speaker Ryan, Congressman Walden (OR), and Cure SMA Board Member Greg Zerzan.

As more SMA drugs reach late stage clinical trials, we remain focused on educating, involving, and engaging all three groups in our community: the patient and family group, the government and regulatory group, and the biotech and pharmaceutical companies that are developing and testing SMA drugs. We recognize that we need the whole community working together in order to develop safe and effective treatments for SMA and get them approved as quickly as possible.

The Congressional Dinner is one of the centerpiece events for these important goals. The evening also raised more than $214,000 for SMA research and family support, bringing the five-year total of this event to $580,000!

Our Industry Partners

Our thanks to the corporate and industry partners who made this evening a success.

Discovery Sponsors

  • Biogen
  • Quest Diagnostics

New Direction Sponsors

  • Genentech
  • National Association of Broadcasters (NAB)

Benefactor Sponsors

  • AveXis
  • CTIA
  • McGraw Hill
  • PNC Financial

Hope Sponsors

  • Goldman Sachs Group
  • Altria
  • Biotechnology Industry Organization (BIO)
  • Comcast
  • Cytokinetics
  • Fluor Corporation
  • Independent Insurance Agents and Brokers of America
  • Viacom

Supporting Sponsors

  • The Cypress Group
  • Drinker Biddle and Reath
  • iHeartMedia (previously Clear Channel)
  • Intercontinental Exchange
  • National Multi Housing Council
  • PG&E
  • PricewaterhouseCoopers
  • Sarepta Therapeutics
  • CME Group
  • FIA

Friends of Cure SMA

  • Assurant Inc.
  • Eastman Chemical Company
  • Kevin MacMillan
  • U.S. Bank

Pictured above: House Speaker Paul Ryan (left) with Cure SMA President Kenneth Hobby.