Community Awareness

Celebrate Rare Disease Day with Cure SMA

February 29, 2024
Posted in ,

Today is Rare Disease Day and the rarest day of all, as this year’s occurrence takes place on February 29! In the U.S., spinal muscular […]

Read More ›

Cure SMA Applauds DOT Proposal to Make Air Travel Safer for Wheelchair Users

February 29, 2024
Posted in , ,

Today, on Rare Disease Day, U.S. Transportation Secretary Pete Buttigieg and White House officials announced actions the U.S. Department of Transportation (DOT) plans to take […]

Read More ›

Cure SMA is Thrilled to Announce the Establishment of our New Chapter in Puerto Rico!

February 7, 2024
Posted in ,

Led by Keishla Rolon, Ramon Rivera Vega, Elizabeth Serrano, Natasha Santiago, and Brenda Luciano, Cure SMA’s Puerto Rico chapter has already been hard at work […]

Read More ›

August is SMA Awareness Month!

August 1, 2023
Posted in ,

Whether you have SMA, have a loved one with SMA, are a researcher, care provider, industry partner, or are new to the SMA community, SMA […]

Read More ›

Cure SMA Holds Patient-Led Listening Session with FDA

October 4, 2022
Posted in , , ,

On Thursday, August 4, 2022, six members of the SMA community had the opportunity to talk directly with the U.S. Food and Drug Administration (FDA) […]

Read More ›

Cure SMA Holds Patient-Led Listening Session with FDA

October 4, 2022
Posted in , ,

On Thursday, August 4, 2022, six members of the SMA community had the opportunity to talk directly with the U.S. Food and Drug Administration (FDA) […]

Read More ›

Community Spotlight: Shaakira Thomas and Family

August 13, 2021
Posted in ,

Every August, the spinal muscular atrophy (SMA) community unites, raises awareness, and shows our pride for SMA Awareness Month. This year, Shaakira Thomas and her family […]

Read More ›

Community Spotlight: Dr. Arthur Burghes

June 8, 2021
Posted in , ,

On the 25th anniversary of the SMA Researcher Meeting, we would like you to learn more about Dr. Burghes and his commitment to the Cure SMA […]

Read More ›

Community Spotlight: Brian Chiorello

December 21, 2020
Posted in , ,

Brian Chiorello is a Principal Service Delivery Manager at a financial services company near where he lives in Orlando, FL. He resides there with his […]

Read More ›

Join Cure SMA for Our First-Ever Walk-n-Roll Virtual Celebration Ceremony

May 22, 2020
Posted in , ,

Cure SMA will host our first-ever Virtual Walk-n-Roll Celebration Ceremony on Saturday, May 30, 2020 at 11 a.m. EDT/10 a.m. CDT/9 a.m. MDT/8 a.m. PDT. Join us […]

Read More ›
Scroll to Top