Just one more week until the 9th Annual “Hope on the Hill” Congressional Dinner in Washington D.C.! Next Tuesday, December 3rd, SMA families and advocates, government officials, and industry leaders will gather to discuss advancements in research, treatment, and patient care, as well as harness the latest momentum to set the course for the next stages in the SMA community.

We are honored to have Dr. Francis Collins, Director of the National Institutes of Health (NIH), attend the event and give this year’s keynote address. His contribution to the understanding of genetics in disease has led to the treatments available for numerous patient communities, including SMA. He will be joined by Walter Robb, former co-CEO of Whole Foods, and other special guests and policymakers, including tentative attendance by Representatives Tom Emmer, James McGovern, Cathy McMorris Rodgers, Michael Simpson and Jackie Speier.

Cure SMA remains focused on educating and engaging all groups in our community: families affected by SMA, governmental and regulatory officials, insurance providers and payers, and biotech and pharmaceutical companies. Now, more than ever, we must make certain that all these audiences understand the impact of SMA.

In conjunction with the “Hope on the Hill” event, we will also be hosting meetings with our collaborative industry group, newborn screening coalition, and others. These meetings will allow us to further our advocacy efforts in support of our strategic goals.

A special thanks to the sponsors who have made this event possible:

Discovery Sponsors

 

 

 

 

 

 

Genentech, a member of the Roche Group, logo

 

 

 

 

 

New Direction Sponsors

Benefactor Sponsors

To see a complete list of sponsors, please visit the 9th Annual “Hope on the Hill” website.