Over the past year and a half, we hope that you have found this page to be a helpful resource as you navigated the COVID-19 pandemic. As we seek to come out the other side and begin to re-engage with our family, friends, and communities, know that Cure SMA’s work for the SMA community continues. Please continue to stay safe and we’re here if you have questions. Just reach out via email at [email protected].

Cure SMA Community Webinar Recordings

Cure SMA FAQ Responses

Prepared & Template Letters

Community Resources 

Healthcare Professional Resources 

Cure SMA Policy Actions in Support of SMA Community

Virus and Prevention Information

About COVID-19:

  • The coronavirus that causes COVID-19 spreads easily and sustainably between people. It spreads more efficiently than influenza, but not as efficiently as measles, which is highly contagious.
  • The virus is spread by respiratory droplets produced when an infected person coughs or sneezes. These droplets can land in the eyes, noses, or mouths of people who are nearby, or even be inhaled into the lungs, or by touching eyes, nose or mouth with hands that have the virus on them.
  • People are thought to be most contagious when they have symptoms but can be contagious early in course of illness. People may have the infection and not have symptoms and can spread the infection.
  • The elderly and adults with underlying health conditions are at increased risk for severe disease. Children seem to present with milder disease, but children have also been hospitalized with COVID-19.
  • Typical symptoms may appear 2 to 14 days after exposure, presenting as fever, cough, and shortness of breath, chills, repeated shaking with chills, muscle pain, headache, sore throat and sudden new loss of smell and taste.
  • The best way to prevent illness is to avoid being exposed to this virus.

Protecting Yourself and Your Family:

  • Concern about COVID-19 can lead to fear and anxiety. Health professionals, and we at Cure SMA, are here to help alleviate these fears.
  • Get the COVID-19 vaccine. Three vaccines are available and approved by the U.S. Food and Drug Administration (FDA) for Emergency Use Authorization. Children between 12 and 18 years of age can receive the Pfizer COVID-19 vaccine.
  • Wear a mask that covers your nose and mouth to help protect yourself and others.
  • Stay 6 feet apart.
  • Avoid crowds. If gathering with others choose to meet outdoors.
  • Avoid others who are sick.
  • Frequently wash hands with soap and water for at least 20 seconds or use alcohol-based hand sanitizer with at least 60% alcohol base.
  • Cover coughs and sneezes with tissue, throw away the tissue and wash hands.
  • Disinfect frequently touched surfaces regularly.
  • If you become ill, stay home and call your doctor’s office to discuss symptoms.
  • Use disinfectants to clean surfaces only.