The Cure SMA Care Center Network is excited to announce the addition of 9 NEW centers to the Care Center Network, bringing the current total number of participants in the Care Center Network to 27 sites across the US.

The new centers of the Care Center Network:

  • Baylor College of Medicine, Houston, Texas
  • Children’s Healthcare of Atlanta, Atlanta, Georgia
  • Northwestern University, Evanston, Illinois
  • The Ohio State University Wexner Medical Center, Neuromuscular Division of Neurology, Columbus, Ohio
  • The University of California, Los Angeles (UCLA), Los Angeles, California
  • The University of Michigan, Ann Arbor, Michigan
  • The Washington University | St. Louis Children’s
  • University of Miami, Coral Gables, Florida
  • University of New Mexico, Albuquerque, New Mexico

The Care Center Network includes over 300 Adult and Pediatric SMA physicians, researchers, clinical staff, and Neuromuscular program coordinators that are all working collaboratively across the nation to better understand and improve standards of care for patients with SMA.

The Network is one of the largest and fastest-growing SMA collaborations in the United States with a collective SMA patient count of over +1500 SMA patients!       

The complete list of participating care centers is as follows:

Advocate Children’s Hospital, Park Ridge, IL
Arkansas Children’s Hospital, Little Rock, AR
Baylor College of Medicine, Houston, TX
Boston Children’s Hospital, Boston, MA
Children’s Healthcare of Atlanta, Atlanta, GA
Children’s National Medical Center, Washington, DC
Children’s of Alabama, Birmingham, AL
Columbia University, New York, NY
Connecticut Children’s Medical Center, Hartford, CT
Gillette Children’s Specialty Healthcare, St. Paul, MN
Northwestern University, Evanston, IL
Phoenix Children’s Hospital, Phoenix AZ
Seattle Children’s Hospital, Seattle, WA
Stanford Children’s Health, Palo Alto, CA
Stanford Health, Palo Alto, CA
The Ohio State University, Wexner Medical Center, Division of Neurology, Columbus, OH
The University of Michigan, Ann Arbor, MI
The Washington University/St. Louis Children’s Hospital, St. Louis, MO
University of California, Los Angeles (UCLA), Los Angeles, CA
University of Miami, Miami, FL
University of New Mexico, Albuquerque, NM
University of Rochester Medical Center, Rochester, NY
University of Texas Southwestern/Children’s Health, Dallas, TX
University of Utah, Program for Inherited Neuro Disorders, SLC, UT
Vanderbilt University Medical Center, Nashville, TN
Yale Pediatric Neuromuscular Clinic, New Haven, CT

Please visit www.curesma.org/sma-care-center-network/ for more information!

Acknowledgements

Thank you to the SMA community for your support. Thank you to Bill and Susan Orr and the Tyler William Orr Memorial Fund and the Oscar G. and Elsa S Mayer Family Foundation for your support. Thank you to the Real World Evidence Collaboration for your support and members include Biogen, Genentech Inc, and Novartis Gene Therapies.