On Thursday, February 15, at 12:00pm CST (10:00am PST/11:00am MST/1:00pm EST), Cure SMA will hold a webinar updating the community on treatment access and clinical trials. Among the topics covered will be: 

  • The current status of Spinraza access, including dosing, sites, and insurance
  • Updates on ongoing clinical trials
  • Updates on upcoming clinical trials
  • News from other programs in the recently updated SMA drug pipeline, and information about Cure SMA’s research

We look forward to hosting an open, candid, and informal discussion of where our community stands on issues surrounding treatment access, and on the status of current and upcoming clinical trials.

Additionally, we encourage you to pre-submit your questions when you register, so that we can plan to answer as many of them as possible. However, you will also have the opportunity to submit questions during the webinar itself, as part of an expanded Q&A segment. 


Please note that this webinar will focus on US issues only.