Registration Now Open for the 2020 Virtual SMA Conference

Cure SMA has released the agenda and registration details for the 2020 Virtual SMA Conference, which will be held from Monday, June 8th – Friday, June 12th. We greatly look forward to virtually uniting as a community in just a few short weeks! It is our #SMAConferenceAtHome. Check out the Virtual SMA Conference Booklet for more details.

The 2020 Virtual SMA Conference will offer the SMA community with a week filled with education, networking, and celebration. Although we cannot be together in-person, we can gather the community virtually for this unprecedented conference.

This year’s conference will continue the tradition of bringing together the SMA community to lend each other support and strength, and to learn more about the latest advances in treatments, research, advocacy, and care. The virtual gathering will include both webinar-based workshops and video networking opportunities.

The 2020 Virtual SMA Conference will kick off with an opening session featuring Cure SMA President, Kenneth Hobby, along with board chairs Richard Rubenstein and Nick Farrell. We will offer a newly diagnosed program and workshops on a wide range of topics, including aquatic therapy, financial planning, education, medical management, and mental health. There will also be four networking sessions for adults with SMA and SMA grandparents, as well as three industry symposiums.

To register for these free webinar and networking events, visit the 2020 Virtual SMA Conference webpage. Please note, you will need to register for each individual event that you are interested in attending. Registration confirmations will come with a specific link that can only be used for that event. Keep an eye out for the full 2020 Virtual SMA Conference booklet, which will provide further details on each event.

Finally, Cure SMA is also encouraging the whole SMA community—individuals and families affected by SMA, researchers, and healthcare providers—to participate in a special end-of-conference celebration. With the goal of showing the strength of the SMA community, we would like everyone to share the many ways in which we are still united during this truly unconventional conference. Think about what represents “unity” for you , then share this symbol on your social channels (Facebook, Twitter, Instagram) Friday evening, June 12th at 7:00 p.m. CT, using the #SMAConferenceAtHome and #CureSMA. We look forward with seeing the SMA community come together as we show how we are “United, At Home.”

If you have any questions, feel free to contact [email protected].


Thank you to the National Presenting Sponsors for the 2020 Virtual SMA Conference and Virtual SMA Research & Clinical Care Meeting: AveXis, Biogen, and Genentech. We would also like to recognize Visionary Sponsor, Ionis, Platinum Sponsor, Scholar Rock, and Silver Sponsor, Accredo, for their support.

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