On Tuesday, February 14, at 1:00pm EST (10:00am PST/11:00am MST/12:00pm CST), Cure SMA hosted a webinar updating the community on the status of Spinraza access. Among the topics covered were adminstration sites, insurance coverage, and community resources and support programs.
We were happy to host an open, candid, and informal discussion of where our community stands on issues surrounding access to this first-ever approved therapy, and what our next steps will be.
As with past webinars, we encourage you to pre-submit your questions when you register, so that we can plan to answer as many of them as possible. However, you will also have the opportunity to submit questions during the webinar itself, as part of an expanded Q&A segment.