Advocacy

Cure SMA Educates Insurers on Unmet Needs and Access Barriers of the SMA Community

August 18, 2025
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  Cure SMA completed a year-long advocacy effort to educate public and private insurers about the current state of spinal muscular atrophy (SMA), including the […]

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Key Congressional Committee Recommends New Federal Research in SMA

August 4, 2025
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A key congressional committee approved fiscal year 2026 legislation that now prioritizes new federal research funding for spinal muscular atrophy (SMA). The U.S. Senate Appropriations […]

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The Future of Accessible Air Travel and Current Challenges for the SMA Community at Cure SMA’s 2025 Annual Conference

July 14, 2025
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At this year’s Annual Cure SMA Conference in Anaheim, California, more than 2,800 attendees from across the country came together to learn, connect, and imagine […]

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New Advocacy Resource: Explore the Cure SMA State and Local Toolkit!

June 9, 2025
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Make an Impact in Your State and Community Cure SMA is proud to announce the launch of our brand-new State and Local Advocacy Toolkit, now […]

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Cure SMA Launches Advocacy Campaign to Secure New Federal Research for SMA

February 5, 2025
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To address the chronic health needs of individuals with spinal muscular atrophy (SMA), Cure SMA and the SMA community have launched a new advocacy campaign […]

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Cure SMA Caregiving Priority Signed into Law

January 6, 2025
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On January 4th, 2025, President Biden signed the Think Differently Database Act (H.R. 670) into law, marking a significant legislative victory for the SMA community. […]

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Cure SMA Advocacy Highlights of 2024

December 20, 2024
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As 2024 draws to a close, Cure SMA reflects on an extraordinary year of advocacy milestones that have advanced the priorities of individuals with spinal […]

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Cure SMA Celebrates New DOT Rule for Accessible Air Travel

December 17, 2024
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Cure SMA is thrilled to share a major win for the SMA community: the U.S. Department of Transportation (DOT) has finalized its rule on ensuring […]

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SMA Community Advocacy Wins and Champions Celebrated at Cure SMA Event

November 20, 2024
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Individuals with spinal muscular atrophy (SMA) and their families recognized congressional champions and celebrated advocacy progress at Cure SMA’s Hope on the Hill event. U.S. […]

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Celebrating Disability Pride and the 34th Anniversary of the ADA at the White House

September 11, 2024
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This week, Cure SMA and advocates with SMA celebrated Disability Pride and the 34th Anniversary of the Americans with Disabilities Act (ADA) with a special […]

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