Advocacy
The Future of Accessible Air Travel and Current Challenges for the SMA Community at Cure SMA’s 2025 Annual Conference
At this year’s Annual Cure SMA Conference in Anaheim, California, more than 2,800 attendees from across the country came together to learn, connect, and imagine […]
Read More ›New Advocacy Resource: Explore the Cure SMA State and Local Toolkit!
Make an Impact in Your State and Community Cure SMA is proud to announce the launch of our brand-new State and Local Advocacy Toolkit, now […]
Read More ›Cure SMA Launches Advocacy Campaign to Secure New Federal Research for SMA
To address the chronic health needs of individuals with spinal muscular atrophy (SMA), Cure SMA and the SMA community have launched a new advocacy campaign […]
Read More ›Cure SMA Caregiving Priority Signed into Law
On January 4th, 2025, President Biden signed the Think Differently Database Act (H.R. 670) into law, marking a significant legislative victory for the SMA community. […]
Read More ›Cure SMA Advocacy Highlights of 2024
As 2024 draws to a close, Cure SMA reflects on an extraordinary year of advocacy milestones that have advanced the priorities of individuals with spinal […]
Read More ›Cure SMA Celebrates New DOT Rule for Accessible Air Travel
Cure SMA is thrilled to share a major win for the SMA community: the U.S. Department of Transportation (DOT) has finalized its rule on ensuring […]
Read More ›SMA Community Advocacy Wins and Champions Celebrated at Cure SMA Event
Individuals with spinal muscular atrophy (SMA) and their families recognized congressional champions and celebrated advocacy progress at Cure SMA’s Hope on the Hill event. U.S. […]
Read More ›Celebrating Disability Pride and the 34th Anniversary of the ADA at the White House
This week, Cure SMA and advocates with SMA celebrated Disability Pride and the 34th Anniversary of the Americans with Disabilities Act (ADA) with a special […]
Read More ›Congressional Action Recognizes Unmet Needs of SMA Community
This week, a key congressional committee recognized the unmet, everyday living needs of individuals with spinal muscular atrophy (SMA) by urging the National Institutes of […]
Read More ›SMA Community Advocacy Results in Key Accessible Air Travel Win
On May 16, after more than 2-years of advocacy and education by the SMA and disability communities, Cure SMA-supported legislation was signed into law making […]
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