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Cure SMA Attends Spring 2024 Professional Organization Conferences to Promote Findings from Industry Collaboration Initiatives 

May 20, 2024
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Cure SMA is pleased to announce the participation of scientific leadership in the 2024 Muscular Dystrophy Association (MDA) Virtual Clinical & Scientific Conference (March 3 […]

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Registration is Open for the 2024 Annual SMA Conference!

December 7, 2023
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We are excited to announce that registration is now open for the 2024 Annual SMA Conference, which will be held at the JW Marriott Austin in […]

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Biohaven Completes Enrollment in Pivotal Phase 3 Study

September 19, 2023
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Recently, Biohaven released a statement on the completed enrollment of their pivotal Phase 3 Study of Taldefgrobep Alfa in people with SMA. Check out Biohaven’s […]

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The State of SMA – Toward Improved Therapeutics and Care

September 7, 2023
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Each year, Cure SMA collaborates with our Scientific Advisory Board to plan a Special Session that will be held during the Annual Research & Clinical […]

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Thank You for an Amazing 2023 Annual SMA Conference!

July 24, 2023
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Thank you to everyone who attended the 2023 Annual SMA Conference at Disney’s Yacht & Beach Club in Orlando, Florida! It was an impactful weekend […]

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Cure SMA Applauds Federal Agency Decision that Should Lead to Better Insurance Coverage for Seat Elevation Systems in Power Wheelchairs

May 25, 2023
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Thanks to the advocacy of individuals with spinal muscular atrophy (SMA) and others, the Centers for Medicare and Medicaid Services (CMS) now considers seat elevation […]

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Biogen Announces New Updates Across its SMA Research Program at 2023 MDA Conference

April 11, 2023
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First patient treated in the ASCEND study evaluating the potential benefit of investigational higher dose nusinersen in children, teens and adults previously treated with Evrysdi® (risdiplam) […]

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Cure SMA Announces Expanded Phase 8 of SMA Industry Collaboration

April 4, 2023
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Cure SMA is pleased to announce the launch of an expanded Phase 8 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted […]

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Cure SMA Welcomes New Care Center Network Site!

March 22, 2023
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We’d like to give a warm welcome to Children’s Hospital Colorado as a newly added Cure SMA Care Center! Thank you to Loree, Ward and […]

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FDA Issues Safety Warning Regarding Neck Float Devices for Babies

August 18, 2022
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On June 28,2022, the U.S. Food and Drug Administration (FDA) issued a safety communication about using neck float with babies. This occurs when a serious […]

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