About Us

Cure SMA’s 2019 Commitments to the Community

January 28, 2019
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Dear Friends, Welcome to 2019! The start of the new year is a fantastic opportunity for us to share the exciting things we have planned […]

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Uniting the SMA Community Through Local Programs and Support

May 2, 2018
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After her son William’s SMA type 2 diagnosis in April 2001, Heidi Johnson’s doctor immediately showed her the Cure SMA (then Families of SMA) website […]

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Cure SMA Welcomes New Medical Advisory Council Committee Members

March 1, 2018
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We are excited to welcome 20 new members to our Medical Advisory Council (MAC). These clinicians represent eleven specialties, including specialties that were not previously […]

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Cure SMA Welcomes Aboard New Board and Committee Members

September 13, 2016
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Recently, Cure SMA confirmed three new board members and one new committee member. These new members will provide additional leadership in the areas of advocacy, […]

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Cure SMA Welcomes New Board and Committee Members

April 29, 2016
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Recently, Cure SMA confirmed three new board members and several new committee members. These new members will provide additional leadership in the areas of advocacy, […]

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Cure SMA Welcomes the Virginia Chapter

March 27, 2015
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Cure SMA is pleased to announce the creation of a new chapter in Virginia. This chapter will also serve residents of Washington DC. Led by […]

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Cure SMA Funds 26 Research Projects in 2014

December 2, 2014
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Our strategic research approach includes four areas—basic research, drug discovery, clinical trials, and clinical care—working together toward our vision of a world without SMA. Cure […]

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SMA Drug Pipeline Continues to Grow

November 21, 2014
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This is an exciting time for the entire SMA community, as we celebrate another year of increasing momentum toward our goal of a treatment and […]

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Applications for the Cure SMA Medical Advisory Board Due 10/1/14

September 16, 2014
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Cure SMA is expanding its role in spinal muscular atrophy medical affairs at the national level through its Medical Advisory Council (MAC). The MAC sets […]

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Funding Process Reaches Next Steps for Spinal Muscular Atrophy Clinical Care Research

September 11, 2014
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At the end of last week, we announced the close of our for request for proposals (RFP) for clinical care research. A clinical care RFP […]

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