Community Awareness
Cure SMA and the Luke 18:1 Foundation Launch New Fold & Go Wheelchair Grant Program
Cure SMA is excited to announce the launch of a brand-new equipment grant program, made possible through the generous support of the Luke 18:1 Foundation. […]
Read More ›Cure SMA 2025 Hill Day: 24 Hours of Advocacy Impact
On Tuesday, September 16, about 150 adults with spinal muscular atrophy (SMA) and family members of children with SMA visited Capitol Hill to advocate for […]
Read More ›This August is Spinal Muscular Atrophy (SMA) Awareness Month!
Whether you live with SMA, know someone who does, work in research or care, or are beginning your journey with the community-SMA Awareness Month is […]
Read More ›Cure SMA Launches Advocacy Campaign to Secure New Federal Research for SMA
To address the chronic health needs of individuals with spinal muscular atrophy (SMA), Cure SMA and the SMA community have launched a new advocacy campaign […]
Read More ›Rare Disease Month 2025: Driving Progress Through Research
February marks Rare Disease Month, a time to amplify the voices of the 300 million people worldwide living with a rare disease-including the individuals in […]
Read More ›August is Spinal Muscular Atrophy (SMA) Awareness Month!
Whether you have SMA, have a loved one with SMA, are a researcher, care provider, industry partner, or are new to the SMA community, SMA Awareness […]
Read More ›SMA Community Advocacy Results in Key Accessible Air Travel Win
On May 16, after more than 2-years of advocacy and education by the SMA and disability communities, Cure SMA-supported legislation was signed into law making […]
Read More ›Celebrate Rare Disease Day with Cure SMA
Today is Rare Disease Day and the rarest day of all, as this year’s occurrence takes place on February 29! In the U.S., spinal muscular […]
Read More ›Cure SMA Applauds DOT Proposal to Make Air Travel Safer for Wheelchair Users
Today, on Rare Disease Day, U.S. Transportation Secretary Pete Buttigieg and White House officials announced actions the U.S. Department of Transportation (DOT) plans to take […]
Read More ›Cure SMA is Thrilled to Announce the Establishment of our New Chapter in Puerto Rico!
Led by Keishla Rolon, Ramon Rivera Vega, Elizabeth Serrano, Natasha Santiago, and Brenda Luciano, Cure SMA’s Puerto Rico chapter has already been hard at work […]
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