Community Awareness

Community Spotlight: Allyson Henkel

September 24, 2018
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My son Pete and I began advocating to have SMA added to the newborn screening panel in Pennsylvania in December of 2017. Pete was 13-years […]

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Community Spotlight: The Lasko Family

September 17, 2018
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After Max began receiving Spinraza in 2017, we wanted to do our part to help ensure that children born with SMA would be diagnosed as […]

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Sweet Baby Zane Funds New Equipment Pool Item

August 31, 2018
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Cure SMA is excited to announce that 12 new Panthera pediatric lightweight wheelchairs have been purchased thanks to generous funding from Sweet Baby Zane. These […]

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Cure SMA Receives Generous Donation from the Cash Scanlon-Philips Foundation

August 28, 2018
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Cure SMA would like to thank the Cash Scanlon-Philips Foundation for their generous donation to fund a years’ worth of type II newly diagnosed care packages. […]

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Community Spotlight: The Anton Jensen Family

August 27, 2018
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Quinn Anton Jensen was diagnosed with spinal muscular atrophy (SMA) type II on March 2007 in Iowa City. Quinn’s mom, Nancy, recalls the genetic testing […]

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Community Spotlight: The Nelson Family

August 24, 2018
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Mary was 4 months old when her parents, Ryan and Kate Nelson, suspected something wasn’t quite right with their daughter; she wasn’t bearing weight on […]

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Community Spotlight: The Zmaczynski Family

August 23, 2018
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At 7 months old, Sarah Zmaczynski’s parents, Jill and John, noticed their daughter couldn’t bear weight on her legs. Sarah’s pediatrician responded with the “kids […]

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Community Spotlight: Doug McCullough

August 21, 2018
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In 2014, Doug McCullough gave a TEDx talk at a Johnson & Johnson event in New Jersey that focused on disability inclusion in the workplace. […]

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Cure SMA Concert for a Cure Reaches $2 Million Milestone

August 21, 2018
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The 2018 Cure SMA Concert for a Cure raised $210,000 on April 21, 2018. After combining many years of fundraising and hard work, the 18th […]

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Community Spotlight: The Colone Family

August 21, 2018
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In this Community Spotlight, Victoria Colone delves into the complexities of early diagnosis and treatment as a mom navigating the world of healthcare for her […]

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