Fall 2017 Directions Now Available for Download

The Fall 2017 issue of Directions is now available. Please visit our Support & Care Publications page to download this issue or past issues of Directions.

Our biannual newsletter builds our community by sharing stories and experiences. Families from all over the world connect with each other through Cure SMA to organize, share stories, photos, news, information, and most importantly – hope. This issue of Directions includes:

  • Information on the upcoming 2018 Annual SMA Conference in Dallas, TX
  • A full recap of the 2017 Annual SMA Conference at Walt Disney World
  • News and updates on current clinical trials
  • Recap of the Patient Focused Drug Development Meeting
  • Newborn Screening Advocacy Overview
  • Community Statement from Biogen on Spinraza
  • Update on Spinraza sites and administration
  • 2018 Research Funding and Priorities
  • SMA Awareness Month recap and photos
  • Family Support articles and Chapter photos

Cure SMA would like to thank everyone who contributed to the Fall 2017 issue of Directions. This newsletter would not be possible without your continued support.

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