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What is the Summit of Strength Program?

April 2, 2019
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Cure SMA is thrilled to continue to provide the Summit of Strength Program to local communities throughout the United States. The 2018 Summit of Strength […]

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We’re Celebrating Local Support

April 1, 2019
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We’re doing everything we can to improve quality of life for children, adults and families affected by SMA. We give individuals and families the information […]

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Cure SMA Awards $200,000 Grant to Alberto Kornblihtt, PhD, Universidad de Buenos Aires

March 28, 2019
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Cure SMA and FAME (Families of SMA, Argentina) have awarded a $200,000 research grant to Alberto Kornblihtt, PhD, at the Universidad de Buenos Aires, Argentina, […]

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Cure SMA Awards $200,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

March 27, 2019
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Cure SMA has awarded a $200,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, “Neurofilaments as markers of neurodegeneration in […]

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The Winter 2019 issue of Compass in Now Available Online

March 26, 2019
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The Winter 2019 issue of Compass is now available online. This issue covers Cure SMA’s latest drug discovery grant funding and features an updated SMA […]

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Team Cure SMA New York City Half Marathon Runners Raise $15,000 for Cure SMA

March 22, 2019
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Nine Team Cure SMA runners completed the 2019 United Airlines New York City Half Marathon on Sunday, March 17. Together, the runners successfully raised over […]

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Record Number of Abstracts Submitted for the 2019 SMA Researcher Meeting

March 21, 2019
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Abstract submission is now closed for the 2019 SMA Researcher Meeting. We are excited to announce that we received 166 submissions, a record number. Our […]

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Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration

March 19, 2019
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Today, Cure SMA and Parent Project Muscular Dystrophy (PPMD) announced their strategic collaboration to collect real-world data to improve the lives of those affected by […]

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Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment

March 14, 2019
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For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, and challenges. We know that the […]

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Recording of Genentech/Roche and Cure SMA Webinar Now Available Online

March 14, 2019
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A recording of this week’s webinar with Genentech/Roche is now available online. During the webinar, Genentech/Roche shared their history working with the SMA community, and […]

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