Front Page News
August is SMA Awareness Month!
The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month, an effort that Cure SMA has been coordinating since 1996. Throughout August, the […]
Biogen Releases Update on Spinraza Access
On Monday, Biogen released an update detailing our community’s progress in gaining access to Spinraza. The latest update shows that significant progress has been made […]
Summer 2017 Issue of Compass Now Available
The summer 2017 issue of Compass is now available online. As part of our most recent round of funding, we’ve announced ten grants totaling $1.03 […]
Call to Action: Senate Expected to Vote on Healthcare Bill Today
Today, members of the Senate are scheduled to begin voting on the Better Care Reconciliation Act (“Better Care Act”) of 2017. This is the Senate’s […]
2017 Annual SMA Conference Recap
Thank you to everyone who attended the 2017 Annual SMA Conference at Disney’s Contemporary Resort in Orlando, FL; it was truly a magical weekend of […]
Missouri is the First State to Institute Newborn Screening for Spinal Muscular Atrophy
Governor Eric Greitens today signed into law Missouri Senate Bill 50, instituting newborn screening for spinal muscular atrophy (SMA). The bill makes Missouri the first […]
Cure SMA Launches Newborn Screening Grassroots Advocacy Campaign for Spinal Muscular Atrophy Newborn Screening
Today, as part of the Annual SMA Conference, we announced the launch of a new grassroots advocacy campaign to implement newborn screening for spinal muscular […]
Summer 2017 Update to SMA Drug Pipeline is Released
We’ve recently released an update to the SMA drug pipeline. This latest version includes: 19 active programs, including one approved therapy. 14 pharmaceutical partners. 5 […]
Cure SMA Funded Standard of Care Paper Published in Neuromuscular Disorders Journal
The journal Neuromuscular Disorders has published a paper reporting on the findings of an international workgroup convened to update the Standard of Care (SOC) for […]
The 2017 Annual SMA Conference is Here!
The 2017 Annual SMA Conference, now in its 29th year, is set to kick off on June 29 and continue into a weekend full of […]