Latest News
HHS Action Improves Healthcare Accessibility and Strengthens Protections against Disability Discrimination in Healthcare
The U.S. Department of Health and Human Services (HHS) today finalized a rule to increase healthcare accessibility and strengthen federal protections against healthcare discrimination based on disability. The rule was […]
Read More ›Genentech Releases SMA Community Letter Recapping Spring Activities
On May 3, 2024, Genentech released an update to the SMA community related to Evrysdi® (risdiplam) and Genentech’s activities in service of the SMA community. Read the full community statement […]
Read More ›Accessible Air Travel Update – Next Steps
This week, Cure SMA urged the U.S. Department of Transportation (DOT) to strengthen and quickly implement its proposed rule on ensuring safe accommodations for air travelers with spinal muscular atrophy […]
Read More ›Cure SMA Launches New Resources to Enhance Clinical Trial Access
Cure SMA is pleased to announce the release of new resources to support our community’s ability to navigate the evolving landscape of SMA clinical trials. These resources are intended to […]
Read More ›Cure SMA Announces Expanded Phase 9 of SMA Industry Collaboration
Cure SMA is pleased to announce the launch of an expanded Phase 9 of our SMA Industry Collaboration. The SMA Industry Collaboration is a multi-faceted partnership that brings together pharmaceutical […]
Read More ›Biogen Releases SMA Community Letter
On April 19, 2024, Biogen released an update to the SMA community sharing recent data presentations from Spring conferences and latest updates from their SPINRAZA® (nusinersen) clinical development program. Read […]
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