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Call to Action: Senate Expected to Vote on Healthcare Bill Today
Today, members of the Senate are scheduled to begin voting on the Better Care Reconciliation Act (“Better Care Act”) of 2017. This is the Senate’s version of legislation modifying key […]
Read More ›2017 Annual SMA Conference Recap
Thank you to everyone who attended the 2017 Annual SMA Conference at Disney’s Contemporary Resort in Orlando, FL; it was truly a magical weekend of community, research and fun! While […]
Read More ›Missouri is the First State to Institute Newborn Screening for Spinal Muscular Atrophy
Governor Eric Greitens today signed into law Missouri Senate Bill 50, instituting newborn screening for spinal muscular atrophy (SMA). The bill makes Missouri the first state in the country to […]
Read More ›Cure SMA Launches Newborn Screening Grassroots Advocacy Campaign for Spinal Muscular Atrophy Newborn Screening
Today, as part of the Annual SMA Conference, we announced the launch of a new grassroots advocacy campaign to implement newborn screening for spinal muscular atrophy. Today’s kick-off event is […]
Read More ›Summer 2017 Update to SMA Drug Pipeline is Released
We’ve recently released an update to the SMA drug pipeline. This latest version includes: 19 active programs, including one approved therapy. 14 pharmaceutical partners. 5 programs in clinical trials. An […]
Read More ›Cure SMA Funded Standard of Care Paper Published in Neuromuscular Disorders Journal
The journal Neuromuscular Disorders has published a paper reporting on the findings of an international workgroup convened to update the Standard of Care (SOC) for SMA. Cure SMA provided funding […]
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