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Celebrate Rare Disease Day with Cure SMA

February 29, 2024
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Today is Rare Disease Day and the rarest day of all, as this year’s occurrence takes place on February 29! In the U.S., spinal muscular atrophy (SMA) affects nearly 9,000 […]

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Cure SMA Applauds DOT Proposal to Make Air Travel Safer for Wheelchair Users

February 29, 2024
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Today, on Rare Disease Day, U.S. Transportation Secretary Pete Buttigieg and White House officials announced actions the U.S. Department of Transportation (DOT) plans to take to improve air safety for […]

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Cure SMA Awards $100,000 Grant to Elana Molotsky, PhD, at the Johns Hopkins University School of Medicine

February 26, 2024
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA biology. Our Scientific Advisory Board […]

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Cure SMA Awards $150,000 Grant to Melissa Bowerman, PhD, at Keele University

February 21, 2024
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Each year, Cure SMA invites scientists from around the world to submit funding proposals for basic research projects that address specific unanswered questions in SMA biology. Our Scientific Advisory Board […]

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New Report Highlights Caregiving Challenges of Individuals with Spinal Muscular Atrophy

February 16, 2024
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Cure SMA released a national report on National Caregivers Day that chronicles the caregiving challenges experienced by individuals with spinal muscular atrophy (SMA) and recommends state and federal actions to […]

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Cure SMA is Thrilled to Announce the Establishment of our New Chapter in Puerto Rico!

February 7, 2024
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Led by Keishla Rolon, Ramon Rivera Vega, Elizabeth Serrano, Natasha Santiago, and Brenda Luciano, Cure SMA’s Puerto Rico chapter has already been hard at work helping individuals and families throughout […]

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