Latest News
August is Spinal Muscular Atrophy (SMA) Awareness Month!
Whether you have SMA, have a loved one with SMA, are a researcher, care provider, industry partner, or are new to the SMA community, SMA Awareness Month is a time to come […]
Read More ›Cure SMA Publishes Update on the Birth Prevalence of Spinal Muscular Atrophy (SMA)
Cure SMA is pleased to announce the publication of “Newborn Screening and Birth Prevalence for Spinal Muscular Atrophy in the US” in JAMA Pediatrics on July 15, 2024. This paper […]
Read More ›Special Session Highlights from 2024 Annual SMA Research & Clinical Care Meeting
Each year, Cure SMA collaborates with our Scientific Advisory Board to plan a Special Session to be held during the Annual Research & Clinical Care Meeting. This Special Session is […]
Read More ›Congressional Action Recognizes Unmet Needs of SMA Community
This week, a key congressional committee recognized the unmet, everyday living needs of individuals with spinal muscular atrophy (SMA) by urging the National Institutes of Health (NIH) to support new […]
Read More ›SMA Highlights: Updates from Biogen
On July 12, 2024, Biogen shared highlights and updates from the 2024 Annual SMA Conference, including their collaboration with Delta Flight Products and their sponsorship of the Self-Expression Art Exhibit […]
Read More ›Clinical Research and Drug Development Session Highlights from 2024 Annual SMA Research & Clinical Care Meeting
During the first week of June, SMA researchers and clinicians from around the world met in Austin, Texas, for the 28th Annual SMA Research & Clinical Care Meeting. Their common […]
Read More ›