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Cure SMA Celebrates Dr. Mary Schroth as she Retires as Chief Medical Officer

June 10, 2025
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We are honored to celebrate the incredible contributions of Dr. Mary Schroth, who is retiring after seven years as our Chief Medical Officer and after many decades of service and […]

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New Advocacy Resource: Explore the Cure SMA State and Local Toolkit!

June 9, 2025
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Make an Impact in Your State and Community Cure SMA is proud to announce the launch of our brand-new State and Local Advocacy Toolkit, now available on the Advocacy webpage! […]

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Understanding Gene Therapy: A Cure SMA Video

May 19, 2025
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A drug’s mechanism of action, or MOA, refers to how a drug or other substance produces an effect in the body. Understanding a drug’s mechanism of action (MOA) is crucial […]

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Double Your Power, Double Our Progress: Help Cure SMA Unlock $150,000 for SMA Research!

May 19, 2025
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During our Nunemaker Family Research Community Challenge, all donations will be matched up to $150,000! Cure SMA is proud to announce the launch of our Nunemaker Family Research Community Challenge, […]

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Last Chance to Participate in the Annual Cure SMA Community Update Survey

May 16, 2025
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Since 2017, the Cure SMA Community Update Survey has collected data and information on the SMA community’s experiences and unmet needs. Every single individual with SMA and their families bring […]

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Novartis Gene Therapies Releases Spring SMA Community Update Letter

May 5, 2025
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Novartis Gene Therapies recently released an update on their continued collaboration with the SMA community through events, advisory boards, clinical insights, and ongoing efforts to center patient, family, and community […]

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