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Community Spotlight: Amber-Joi Watkins and Family

October 5, 2022
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The Igbo and Yoruba proverb, “It takes a village to raise a child” has been in use for centuries and remains in use across languages and cultures due to its […]

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Cure SMA Holds Patient-Led Listening Session with FDA

October 4, 2022
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On Thursday, August 4, 2022, six members of the SMA community had the opportunity to talk directly with the U.S. Food and Drug Administration (FDA) about their lived experiences with […]

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A Deliciously Easy Way to Fundraise for Cure SMA

October 4, 2022
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Nothing brings people together more than sharing a meal, but what if you could make that meal even more meaningful? We’re encouraging all members of our SMA community to consider […]

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Cure SMA Holds Patient-Led Listening Session with FDA

October 4, 2022
Posted in , ,

On Thursday, August 4, 2022, six members of the SMA community had the opportunity to talk directly with the U.S. Food and Drug Administration (FDA) about their lived experiences with […]

Read More ›

A Deliciously Easy Way to Fundraise for Cure SMA

October 4, 2022
Posted in ,

Nothing brings people together more than sharing a meal, but what if you could make that meal even more meaningful? We’re encouraging all members of our SMA community to consider […]

Read More ›

Special NBS Awareness Month Announcement: South Carolina Screens for SMA!

September 26, 2022
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Cure SMA is pleased to announce that South Carolina is now screening babies born in the state for spinal muscular atrophy (SMA). South Carolina Department of Health and Environmental Control […]

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