Latest News
Record Number of Abstracts Submitted for the 2019 SMA Researcher Meeting
Abstract submission is now closed for the 2019 SMA Researcher Meeting. We are excited to announce that we received 166 submissions, a record number. Our submissions come from researchers in […]
Read More ›Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration
Today, Cure SMA and Parent Project Muscular Dystrophy (PPMD) announced their strategic collaboration to collect real-world data to improve the lives of those affected by spinal muscular atrophy (SMA) and […]
Read More ›Cure SMA Launches Third Annual Community Survey to Address Important Issues in SMA Treatment
For the past several years, we’ve been working to collect data and information on our community’s experiences, goals, hopes, and challenges. We know that the voice of our community is […]
Read More ›Recording of Genentech/Roche and Cure SMA Webinar Now Available Online
A recording of this week’s webinar with Genentech/Roche is now available online. During the webinar, Genentech/Roche shared their history working with the SMA community, and their investigational medicine risdiplam. Updates […]
Read More ›Cure SMA Advocates for SMA Community at ICER Hearing
On Thursday, March 7, Cure SMA testified on behalf of the SMA community at a meeting of the Institute for Clinical and Economic Review (ICER). ICER is an independent health […]
Read More ›Biogen Provides 2019 Community Update on Spinraza
Dear members of the SMA community, As we celebrate Rare Disease Day 2019, we are honored to continue supporting the spinal muscular atrophy (SMA) community. In recent weeks and months, […]
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