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Cure SMA Database Findings Published in the Journal of Neuromuscular Diseases

April 9, 2018
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An important goal at Cure SMA is to collect data to better understand the SMA patient population, and then to report this data back to our industry partners, regulators, and […]

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Novartis Agrees to Acquire AveXis

April 9, 2018
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AveXis, Inc. and Novartis announced today that they have entered into an agreement and plan of merger. Novartis will acquire AveXis in a transaction unanimously approved by the Boards of […]

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SMA Newborn Screening Guidelines Published in Journal of Neuromuscular Diseases

April 6, 2018
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The recent decision of the federal Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) to recommend SMA for addition to the RUSP, as well as the implementation of […]

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Community Spotlight: Nathan Yates

April 4, 2018
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Growing up in Virginia, Nathan Yates always had a vision for his future. From an early age, he became interested in finance, and as a teenager managed his own small […]

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Cure SMA Welcomes Back AveXis as a 2018 National Premier Partner

April 2, 2018
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Cure SMA is excited to announce that AveXis is returning as a National Premier Partner for 2018. As part of their partnership, AveXis is generously supporting our Chapter Leader Summit, […]

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Cure SMA Awards $150,000 Grant to Brunhilde Wirth, PhD, Institute of Cologne, Germany

March 29, 2018
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Cure SMA has awarded a $150,000 research grant to Brunhilde Wirth, PhD, at Institute of Cologne, Germany, for her project, “Study of combinatorial therapy based on SPINRAZA together with a […]

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