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Cure SMA Awards $50,000 Grant to Rashmi Kothary, PhD, University of Ottawa

March 29, 2018
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Cure SMA has awarded a $50,000 research grant to Rashmi Kothary, PhD, at the University of Ottawa, for his project, ” The shifting landscape of SMA research: towards a better […]

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Scholar Rock Granted Orphan Drug Designation by the FDA for SRK-015 for the Treatment of Patients with SMA

March 29, 2018
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Scholar Rock today announced that the U.S. Food and Drug Administration (FDA) has granted Orphan Drug Designation (ODD) to its lead antibody product candidate, SRK-015, for the treatment of spinal […]

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Cure SMA Awards $150,000 Grant to Robin Parks, PhD, University of Ottawa

March 28, 2018
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Cure SMA has awarded a $150,000 research grant to Robin Parks, PhD, at the University of Ottawa, for his project, “Serum-derived exosomes as a biomarker for Spinal Muscular Atrophy.” Dr. […]

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Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018

March 26, 2018
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Cure SMA is thrilled to welcome Biogen back as a National Premier Partner for 2018. As a part of their partnership, Biogen will be sponsoring all walk-n-rolls and galas across […]

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House and Senate Vote to Increase Federal Funding for Newborn Screening Programs

March 23, 2018
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Today, Congress passed a new federal spending bill, increasing funding for several critical newborn screening programs, that the President also signed. The bill increases funding for the Health Resources and Services Administration […]

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Cure SMA Awards $150,000 Grant to Charlotte Sumner, MD, Johns Hopkins University

March 21, 2018
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Cure SMA has awarded a $150,000 research grant to Charlotte Sumner, MD, at Johns Hopkins University, for her project, “Testing the potential of SMN-AS1 as a therapeutic target in SMA.” […]

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