Our Impact

Cure SMA Awards $150,000 Grant to Robin Parks, PhD, University of Ottawa

March 28, 2018
Posted in , ,

Cure SMA has awarded a $150,000 research grant to Robin Parks, PhD, at the University of Ottawa, for his project, “Serum-derived exosomes as a biomarker […]

Read More ›

Cure SMA Awards $75,000 Grant to Robert Kalb, MD, Northwestern University

March 14, 2018
Posted in , ,

Cure SMA has awarded a $75,000 research grant to Robert Kalb, MD, at Northwestern University Feinberg School of Medicine, for his project, “Effects of diminished […]

Read More ›

Cure SMA Awards $150,000 Grant to Umrao Monani, PhD, Columbia University

March 13, 2018
Posted in , ,

Cure SMA has awarded a $150,000 research grant to Umrao Monani, PhD, at Columbia University, for his project, “SMA modulators as a means to revealing […]

Read More ›

Cure SMA Awards $150,000 Grant to Allison Ebert, PhD, Medical College of Wisconsin

March 7, 2018
Posted in , ,

Cure SMA has awarded a $150,000 research grant to Allison Ebert, PhD, at the Medical College of Wisconsin, for her project, “Role of astrocyte-produced miR-146a […]

Read More ›

Awareness is Best Raised When We Work Together

March 6, 2018
Posted in , ,

When a loved one is affected by spinal muscular atrophy, whether recently diagnosed or living with SMA for a while, you want to make a […]

Read More ›

Additional Funding for SMA Care Centers Announced

February 14, 2018
Posted in , ,

Cure SMA is pleased to announce the second round of grants from $450,000 in funding, awarded to a total of 9 sites to help increase […]

Read More ›

Advisory Committee on Heritable Disorders in Newborns and Children Recommends Nationwide Newborn Screening for Spinal Muscular Atrophy

February 8, 2018
Posted in , ,

The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) today recommended that newborn screening for spinal muscular atrophy be implemented nationwide. This decision […]

Read More ›

Utah Becomes First State to Implement Permanent Screening for SMA

February 6, 2018
Posted in , ,

The Utah Department of Public Health has announced that, effective immediately, all newborns born in the state will be screened for spinal muscular atrophy. This […]

Read More ›

Federal Committee to Vote on Spinal Muscular Atrophy Newborn Screening on Thursday

February 2, 2018
Posted in , ,

On Thursday, February 8, the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC), a federal committee that oversees newborn screening, will vote on […]

Read More ›

SMA Industry Collaboration Releases Spinal Muscular Atrophy Voice of the Patient (VoP) Report

January 19, 2018
Posted in , , ,

Cure SMA and our partners in the SMA Industry Collaboration are pleased to announce the release of the Spinal Muscular Atrophy Voice of the Patient […]

Read More ›
Scroll to Top