Search Results: spinraza

Know Your Resources: How Congressional Caseworkers Can Help You Obtain Insurance Coverage for New Therapies

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Your elected officials who represent you in Washington, D.C. have caseworkers in their regional and district offices in your communities. These caseworkers can help you […]

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Cure SMA Releases Care Series Booklet on Insurance

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Cure SMA is excited to announce the launch of our newest care series booklet, Choice and Connection to Care: A Health Insurance Roadmap for People […]

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Cure SMA Assists Hundreds of Families in 2016

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Each year, Cure SMA provides thousands of families with vital support and resources to help them live active, engaged and hopeful lives.  Our programs provide […]

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2016 Research Year-in-Review: An Historic Year for Our Community

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This has been an historic year for the SMA community. On December 23, the FDA announced its approval of Spinraza, the first-ever approved treatment for […]

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Biogen Resources for the SMA Community

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Biogen has provided the following update on resources they have made available for the SMA community: Biogen recently announced that the U.S. Food and Drug […]

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Help Us Shape the Future Together, and Reach our Goal of $750,000

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This has been an historic year for the SMA community. On October 28, our pharmaceutical partners at Biogen and Ionis announced that their New Drug […]

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Biogen and Ionis Community Statement on Interim Analysis of CHERISH (Type 2) Trial

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Biogen and Ionis Pharmaceuticals have provided the following community statement regarding the interim analysis of the CHERISH trial: Dear Members of the SMA Community, Today […]

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