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About Cure SMA

Make today a breakthrough. Our Mission and Vision Cure SMA leads the way to a world where everyone impacted by spinal muscular atrophy (SMA) is […]

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Biogen Presents New Spinraza Data at the 2021 Virtual SMA Conference

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Biogen Inc., today announced new research supporting the continued development of an investigational higher dose of SPINRAZA® (nusinersen) and additional data reinforcing the strength of […]

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Nusinersen Research Updates Presented by Biogen

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Biogen recently presented data about ongoing studies of SPINRAZA (nusinersen) in patients with Spinal Muscular Atrophy. Updates included the NURTURE, ENDEAR, SHINE, DEVOTE, and RESPOND […]

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Thank You for a Wonderful 2020 Virtual SMA Conference!

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Cure SMA would like to thank everyone who attended last week’s 2020 Virtual SMA Conference! It was an impactful week of online workshops, networking, and […]

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Biogen Releases Q2 Community Statement on Latest Milestones in Clinical Development Program

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Dear Members of the SMA Community, In light of the COVID-19 pandemic and the burden it has placed on our healthcare system, Biogen is working […]

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Cure SMA Working Group Revises Recommendations for the Treatment of Infants Diagnosed with SMA via Newborn Screening Who Have 4 Copies of SMN2

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To help clinicians and the families they serve in the decision of when to administer therapy to infants identified with SMA via newborn screening, Cure […]

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Biogen Issues Q4 2019 Community Statement on Spinraza

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Dear Members of the SMA Community, As part of Biogen’s ongoing commitment to individuals living with, and caregivers affected by, spinal muscular atrophy (SMA), we […]

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2019 SMA Researcher Meeting Summary: Clinical Drug Development

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The annual SMA Researcher Meeting is the largest research meeting in the world specifically focused on SMA. This year, we had a record setting 735 […]

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Thank You for a Wonderful 2019 Annual SMA Conference!

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Thank you to everyone who attended the 2019 Annual SMA Conference at the Disneyland in Anaheim, California! It was an impactful weekend of community, research […]

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Biogen Issues Community Statement on Spinraza

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Biogen has provided the following community statement on Spinraza. Dear members of the SMA community, Following a busy spring of data presentations at medical congresses […]

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