Search Results: spinraza

Biogen Announces that FDA and EMA Accept Applications for Higher Dose Regimen of Nusinersen in SMA

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“We are committed to supporting individuals with SMA and their families by advancing research that aims to answer critical questions for the community.” Today, Biogen […]

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New Higher Dose Nusinersen Efficacy and Safety Data Presented at World Muscle Society Congress, Highlight Potential to Maximize Benefit of Nusinersen in SMA

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Findings from Part B and Part C of the DEVOTE study support the clinical benefits of a higher dose regimen of nusinersen (50/28 mg) in […]

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Biogen Announces Positive Topline Results from Study of Higher Dose Regimen of Nusinersen, Showing Significant Benefit in Treatment of SMA

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The positive study demonstrates the potential for investigational higher dose nusinersen regimen to advance the treatment of SMA.  Biogen plans to submit for regulatory approval […]

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Congressional Action Recognizes Unmet Needs of SMA Community

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This week, a key congressional committee recognized the unmet, everyday living needs of individuals with spinal muscular atrophy (SMA) by urging the National Institutes of […]

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Biogen Releases SMA Community Letter

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On April 19, 2024, Biogen released an update to the SMA community sharing recent data presentations from Spring conferences and latest updates from their SPINRAZA® […]

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Our History

Make today a breakthrough. Cure SMA was founded in 1984 to support the SMA community and fund research to find a cure. In our 40-year […]

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Community Spotlight: Dee and River Rolle

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“There is an endearing tenderness in the love of a mother to a son that transcends all other affections of the heart,” said Washington Irvine. […]

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SMA Highlights and Updates from Biogen

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Dear SMA Community, As we reflect on SMA Awareness Month, we take this opportunity to celebrate all those who are a part of the SMA […]

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Clinical Research and Drug Development Session Highlights from 2023 SMA Research & Clinical Care Meeting

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At the end of June, SMA researchers and clinicians from around the world met in Orlando, Florida, for the 2023 Annual SMA Research & Clinical […]

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Thank You for an Amazing 2023 Annual SMA Conference!

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Thank you to everyone who attended the 2023 Annual SMA Conference at Disney’s Yacht & Beach Club in Orlando, Florida! It was an impactful weekend […]

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